Why, I mean WHY did they have to name Ulcerative Colitis such a nasty sounding misleading name that is always misinterpreted as an ulcer or IBS?! I'm tired of having to explain what I have (had J-pouch) and trying to sound lady-like at the same time.
Come on. It's bad enough to actually have Ulcerative Colitis... to make matters worse, we are tormented with having to explain what it means to everyone. No, it's not an ulcer, no it's not colitis, as in IBS, it's a disease. Yes, it's gross.
Didn't someone discover it? Name it his or her name! I had a neighbor once by the name of Kolonowski. He always laughed and made a joke of it that I had Kolonoski Disease because he didn't like to say I had Ulcerative Colitis. It does sound much better. Let's name it that!! That sounds cool. Nice play on the word "Kolon" = "Colon".
Sometimes I just say I have the sister disease to Crohn's to maintain a bit of dignity just because in some professional or not as personal conversations I don't want to say something that sounds so disgusting and leads to questions that make me have to explain what it isn't but having to explain it is more disgusting and debilitating than it sounds.
Most diseases have real names, not names that are really just a misleading description. I want to keep it simple and matter of fact. It needs a plain name.
I'd rather be called any of the 'terrible' words that are no longer allowed by the PC police. Call me anything but don't make me say Ulcerative Colitis. Blahhh. No offense to my fellow UC-ers but don't you feel the same sometimes? We really received the short straw for disease names. Somebody was too lazy to give us a dignified sounding name.
I feel better now after that rant. It's been building up for 20 plus years now after the GI doctor put a brochure in my lap after barely waking up and said you have Ulcerative Colitis, here, read about it. What? Wait... no way. Is that really what they call it? You've got to be joking. Rude.