Silly question

I have been battling chronic cuffitis for over a year. Don't give up yet. You can try anucort, antibiotics, even some old ibd drugs like sulfasalazine. I know it's a lousy alternative as we had this surgery to be medication free. I have been told I will most likely need Canasa for the rest of my life. If it works it's fine with me.

The other option I was offered was a mucosectomy with pouch advancement and rectal cuff removal. I would prefer to tackle this medically, if possible, rather than have more surgery and more potential complications.

If you are having cuffitis, you should have your rectal stump removed. If you have Crohn's Disease, a Kock Pouch usually isn't an option unless it only affects the large colon area.

In my opinion, that is one good thing about the Kock Pouch you don't have the rectal stump for UC to return in.

Guy,
Almost all pain in the rectal/anal region is gone but you can get phantom pains for years...kind of a pressure feeling that something is still there or like you need to 'go'...occasional pain is possible but not usual.
Sharon

Not a silly question at all! I'm just going through it. On June 19th, I had my j pouch and rectum completely removed, and had a k pouch put in. And YES, the rectal pain, which was so bad I was in tears, is completely gone! I do however, get phantom rectal pains, sounds weird, but every once in a while, I'll get a jolt of pain as if my rectum was still there, it feels so strange, but then I remember I have no rectum (YES! The aliens will not be able to probe me, yahoo! Lol!). My current issue is valve leakage, but, in retrospect, even with the k pouch issues, it's NOTHING compared to the agony I suffered for years with my j pouch. I had chronic pouchitis and cuffitis, with killer rectal pain so bad I was crying, I rarely ever cry. I describe it as feeling like I was pooping out acid coated shards of glass. If you're unable to get rid of inflammation and pain, I'd highly recommend the K pouch, or BCIR. Yes, they have their problems too (as I'm discovering), but, I garuntee that it will forever cure the cuffitis and the horrible rectal pain. Keep us posted my friend, if you have any question, please, don't hesitate to PM me, I'm more then happy to help a fellow GI sufferer,

Cheers,
Eric