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I have had my J Pouch for 26 years. I have had 3 bouts with pouchitis in the first 15 years. I have been having bloating, vomiting, diarrhea, abdominal pain, weight loss & gain for 2 1/2 years. After being tested for gastroparesis and numerous other tests, it was determined I had small intestinal bacteria overgrowth. After antibiotic treatment, I was good for 4 months. Now its back and my gastrointestinal doctor said its back and has ordered another round of antibiotics. 

My questions are - is this going to be a lifelong illness, does anyone with a J-Pouch have simular problems, and will a low FODMAP diet be okay long term?

Thanks for any help. 

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How long was your first antibiotic treatment? SIBO is often treated with a three-month course of antibiotic. I used doxycycline, and managed to get through a bit over two months before the bellyache side-effect caused me to declare success. If undertreatment (too short a course of medication) is the reason you’re having a recurrence then there’s no reason to fear a life-long affliction. A low FODMAPs diet should be perfectly okay forever, if that’s what you choose. Whether it will be the thing that prevents SIBO from recurring is a tougher question.

Good luck!

Scott,

My treatment was in Late August into September. I started having symptoms again late January of this year. It was last week that the symptoms got to be too much to handle. I have to wait for insurance to decide if they are covering the expensive medication. I hadn't tried a low FODMAP diet but am willing to start now.

Thanks.

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