Skip to main content

Hi All,

I know a few of you have had SIBO before and I’m wondering what your symptoms were? How quickly did they escalate? And how did they diagnose? Seems like we could avoid the scope for the small intestinal sample and just give a regular stool sample but maybe not? Is breast testing necessary?

Thank you. I’m miserable and trying to figure out WTF is going on.

Original Post

Replies sorted oldest to newest

I don’t think SIBO can be diagnosed with a stool sample. My key symptom was excessive gas, which is a big deal for those of us who only fart on the toilet. It came on slowly. I didn’t have a breath test, but just treated it with a couple of months of doxycycline. Some doctors will prefer to confirm the diagnosis with a breath test.

I was diagnosed with siob.  I had a breath test 2x.  Symptoms, extreme gas.

Treatment,  xifaxan, targets the area kills the bad bacteria not the good.   Changed to a holistic pill & then started olive leaf extract, really helped.  I still get bouts when I stray from my formap diet.   Hope u feel better.

I thought I had SIBO years ago and changed my diet. It did help for a while and I thought I had it figured out. A little over a year ago I started to have the same symptoms plus feeling like glass when I pooped. I had diarrhea for nine days. I could not sleep because I was afraid of leakage which I was having. I had to put a panty liner on to help with the leakage. I was grocery shopping and I had gas so bad I could not hold it back. It was long and loud. I was glad I was not in a busy part of the store. I ended up going to the ER in July 2020. I was very weak but because I was not dehydrated, I was sent home. I tried to explain that I had a low-anterior resection due to rectal cancer. I felt I was speaking a foreign language to the ER doctor. So many doctors do not understand. She looked at me like she did not know what I was talking about. I went home and was frustrated. I called my pc and she had me take antibiotics. I told my doctor at the time I thought it was pouchitis. She put me on a strong anitbiotic and helped with the diarrhea. I started to feel better but soon was feeling yucky again. I went online to do some research. I realized I may have a gluten intolerance. I cut out all gluten and also foods that are a problem with leaky gut. I slowly brought back some foods that are a problem with leaky gut and I tolerated them. So, now I am on a gluten-free diet and have felt pretty darn good. I take a powder suppliment that I bought on Amazon called "Pure" for leaky gut. It has helped me tremendously! My stools have been more solid and am not in the bathroom as much as before I started taking it. I need to get more strength back. Working on that. I had been dealing with so many bathroom issues since my surgery in February 2009. I felt my life was just going to be staying home close to the bathroom. Now I am venturing out all times of the day. I feel so much more confident since taking "Pure". There are many different issues that resemble an auto immune disease. I wish I would have been listened to. Now I have short-term memory problems. I can be talking with someone and actually forget what we were talking about. I hope this gets better. I have not had a formal diagnosis yet but feel so much better. If you have any questions you can DM me. I hope you can get your situation under control. Know you are not alone here. There are so many wonderful people on this forum that are willing to help. I thought it was SIBO and it could have been but so many auto-immune diseases have a lot of similarities.

I had the hydrogen breath test a week ago and today got the results—negative for SIBO. I’m not surprised but what I am surprised by is my doctor’s recommendation to try the Mediterranean diet. Seriously? Whole grains? Nuts? Fresh fruits and vegetables?  I’ve not had success eating any of that since my take down in 2017.

Am I being stubborn thinking my pouch will never tolerate fresh vegetables and nuts? Seems like a lot of trial and mostly error.

I thought my bathroom problems were caused by fruits and vegetables. In the last year I was so sick and everything I ate seemed to give me grief. I had to figure it out myself. I realized I may have a gluten intolerance. I cut out gluten, drink flax milk instead of dairy milk. I take a powder called "Pure", I bought on Amazon. I take it in the morning mixed with 6 oz. of water a half hour before I eat anything. Within a couple weeks after cutting gluten and taking "Pure", I felt so much better. I was having horrible pain in my hips and lower back still. Went back online and realized it may be an iron issue. Anemia can happen with gluten intolerance. I was taking a lot of Tylenol. After I started taking a fermented iron supplement, my hip and back pain went away within two days. I was amazed. I started eating fruits and vegetables to see if they were truly the problem before figuring out what was going on. I am happy to say I am tolerating them just fine now! I had a broccoli salad tonight! I have been in the bathroom less. I have had problems with weakness since surgery for FAP. I have had three doctors since then who never caught it may be an autoimmune disease. I even went to emergency a year ago due to being weak and had diarrhea for nine days. I was taking in more fluids because of the diarrhea at home. So, since I was not dehydrated I was sent home. That is when I went online to figure it out. When I was having a lot of bathroom issues, I assumed it was the fruits and vegetables. Now I know it was the gluten. I was dangerously sick and afraid. My body went through so much. If you want to know the specifics of my problems while eating gluten, please ask. I hope you will figure out what is happening in you. I wish you well.

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
Link copied to your clipboard.