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so had pouchoscopy today with Dr Shen and good things and a questionable thing. Good things first. No strictures, pouch itself had no inflammation and everything appeared normal. He was able to get the scope up past the ileostomy closure site where I had the severe inflammation a few weeks ago and he said looks fine and no inflammation now. No hemorrhoids. Now here is the questionable finding.  

He stated at bottom of pouch I have a very mild distal pouch prolapse. Of course I freaked out and he told me it's nothing to worry about at all. He just kept saying don't worry and the pouch looked good. 

Of course I'm sitting at home worrying about this prolapse now and what does it mean. Remzi's nurse emailed me earlier and said she read the scope report and was happy everything looked good. I guess I need to get Remzi to go over the report and explain it to me. 

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Scott F posted:

So why do you believe him when he says "no inflammation" and doubt him when he says "nothing to worry about at all?"

Scott why you being a d*ck? After all I've been through over the last 8 years when something is not right I believe I've earned the right to worry about it. Shen is one of the best but he's not always right about everything. I value the opinions and thoughts from people here who might have gone through this or can offer any guidance or anything to me. I will wait to hear back from Remzi to see what he has to say since it's a mechanical issue. But hey, thanks Scott

Spoke with both Shen and Remzi this morning and was told the prolapse is very mild and will have similar symptoms to hemorrhoids and only thing I can do is avoid excessive straining. The pouchoscopy was normal and well structured. Remzi stated that this is the last thing I need to worry about and to move on and go enjoy life now!!.. I feel so much better after this conversation..

Very good news! Of course we all should avoid straining. For all I know, all j-pouches have a bit of weakness in this way, just like all pouches have a small level of inflammation.

Hopefully you can now move on and accept some imperfections without worrying that they will snowball into terrible complications!

Jan

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