Has anyone experienced grotesque swelling (3-5 times normal size) of some of their lady parts in direct relation to an RV fistula? 

Here's a very brief summary of what has occurred. Multiple pelvic infections sprouted in a period of 7-10 days in mid October 2018. First, pouchitis. Then 2-3 days later, a vaginal discharge like a geyser & swelling of the left major labia (it swelled as large as a testicle - very odd and painful!). And 2-3 days later, 2 anal abscesses joined the party. The surgeon said the location of the RV fistula was very obvious during the pouchoscopy, so he placed a draining seton at that time. An MRI revealed no abscess network, but did identify the fistula & seton. 

The inflammation of the left labia has waxed & waned twice since the seton was placed 4 weeks ago. I have been on max doses of cipro & flagyl since November. I wonder why my pouchitis has practically resolved, yet the inflamed lady parts continue to be problematic.

Any input would be greatly appreciated!

Original Post

I suffered a bartholins cyst about 5 years ago, things  i’ve never been the same since. It seems whenever I have symptoms of pouchitis I feel pain in that same area where I had the cyst. It finally healed after a drain was placed.  I also easily get a vaginal  infections with burning and itching. I blame all this on my J pouch. Hope your symptoms are much better now !

Like ROXZ I had a bartholins cyst too which was caused by the rv fistula tracking an infection through to the gland. The pain from that was excruciating!

I’m really sorry you’re going through this, I feel your pain!

I’ve had a pouch/vaginal fistula for many years w/ 1 failed repair at Cleveland Clinic. I’ve consulted many top gastros/ IPPA specialty surgeons and leaving the fistula is the best way to keep my pouch intact. Interestingly the fistula appeared shortly after an episode with a ruptured Bartholin Cyst...I’m accepting this and moving on so I don’t let UC steal any more time than it has from me! #strongisthenewbeautiful 

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