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I developed an rv fistula in 2019, which took a while to get diagnosed. Repairs were attempted before my surgeon wanted to divert to a stoma to give the best chance of repair. This was right before covid hit so surgeries were cancelled and pushed back. I finally had a Martius flap repair earlier this year, where they take a fat pad from the labia and weave it into the fistula. A contrast X-ray showed all was well and I was given the okay for takedown. I wasn’t 100% sure if the success and asked the dr that did my pre op (not my surgeon) if they could check whilst I was under. I woke up without the stoma so believed they must have been certain.

im now 4 weeks post and am pretty certain it’s either still there or there’s another fistula. It’s soul destroying, I feel like I’m back at square minus one because at least I had a functioning pouch back then. I feel so down.

thanks for reading

claire

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Hi Cbear hope you're doing fine. I identified myself with you since I have  a rv fistula and I'm desperate because I'm scared and so afraid of being put a temporary ileostomy bag. Back then when I had the bag it was a nightmare. The bag never stuck to my skin regardless of different creams, bags etc. Waiting for your response. Take care

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