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My wife pharmacist insisted I treat my pouch locally with probiotics, VSL#3, directly into the pouch. I now add a package of VSL#3 to my mesalamine enema nightly. I hold it all night, I am good like that. A week after starting this probiotic enema therapy, I stopped taking my lomotil and pepto bismol caplets that I used to take every 6 hours around the clock. Pretty much all symptoms of pouchitis have subsided, for the past 2 months now. And no more taking pills every 6 hours to slow my system. I can't say if this is a permanent solution, nor can I say I'll be willing or able to do an enema each night, but it's certainly been worth it so far. 

Anyone heard of this? Tried it? Any potential dangers?

-Pouchboy

 

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What a great experiment! I have heard of a couple of folks who tried VSL#3 enemas, but I don't recall any feedback with long term results or reports from their GI showing endoscopic improvement. 

 

I hope you come back and let us know how it turns out. Maybe your wife would be interested in publishing an anecdotal report?

 

Jan

I have the generic PERRIGO brand to Rowasa enema. I unscrew the top of the enema, pour one pack of VSL#3 in to the enema, then shake vigorously. I note less effectiveness if I expel after 2-3 hours, but if I hold it in all night to kickstart the VSL, the results for me can not be denied. It's amazing how quickly I kicked the habit of taking pepto and lomotil every 6 hours, shortly after starting this routine. 

Thumprhare and Pouchboy - is there anything new to update on your enema experiment? I'd be interested in knowing how things have progressed. 

Another question - were you using mesalamine enemas unsuccessfully prior to adding VSL to the enema? If you started at the same time, how does one know if it's the melsalamine or VSL (or combination)? 

Last edited by JHendrix

I've been wanting to try probiotic enema. Since it didnt kill you im going to try it. Lol. I have 'Garden of Life Raw probiotic' so this is the one I'm going to try.

I have a question about the actual amount my bowel can hold. I use a bulb syringe and have never tried anything larger. How much solution do you use? 

I have a jpouch!

Thank you pouch boy for going outside the box. I'm following you! 

Jo

Results, again mixed. I have stopped my routine of pepto caplets and lomotil every 6 hours, and take neither of those anymore, after a long tapering period.

I changed my routine to a round of Cipro/Flagyl for a week, then a maintenance schedule of VSL#3 / Rowasa enemas. I also started taking fish oil and culturelle as part of maintenance routine.  I make this last as long as possible, and I do still believe the VSL3 enemas are beneficial to this regime. Rowasa alone has always been beneficial to me, but the vsl mix is more effective, in my opinion. 

It's a struggle, and I have not found the magic bullet I've been searching for, for 8 years now, but I do the best I can and not let my down times effect my mood and ability to lead a normal life.

 

 

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