Skip to main content

Latley I have been having a really hard time just dealing with all of this. Maybe its just the holidays. All the happy families everywhere. While I am alone. I know its my own fault that I dont let someone new in. Its has been 3 years since I lost my husband to melanoma. He adapted to my disease like no one ever had. We could laugh about it. And I need to be able to laugh about it. I never really had to break it down for him. He reconized that its not something i enjoy talking about. So he did his own research. There is nothing about this disease thats hot. And I can feel myself shutting down the first time i start giving the details. I constanly feel as if im just not a good deal. I want someone i care about to be able to enjoy there life. Not have to be constantly concerned with me. Im unable to have children and will never have a family of my own. Or be able to give someone a family. Constant ER visits, doc appointment and just being done. Who would want to deal with that? And if I truly love them, I wouldnt want to make them deal with it. I know its my own mind set that is the problem and no one can change it but me. But Im tired and just want to be normal. Or at least not have to worry about pooping on someone. Its definitly a mood killer. I love having this place. Where I can say anything and you all understand what im saying. The daily struggled for us all, things some of us would never say to others. Here we can laugh about it. So thanks for listening.
Original Post

Replies sorted oldest to newest

Sonja,
I just posted something for you in my previous thread but here I go again...Please take it from someone with experience...not taking a risk for love is the worst risk of all.
I have a full blown map on my tummy with the lumps and bumps and scars (14+ and counting) on top of the lopsided fat and the stoma to boot (this is after 3 corrective surgeries!)...not exactly a bellybutton exposing situation. I am neither the prettiest girl in the room nor the least attractive...I am just me. I stick a tube into my stoma 8+xs a day to empty out my pouch and sometime it leaks...it doesn't make me happy nor does it thrill me but there you have it...I am a mess.
That said, I still found a man to love me...not one that gets me nor one who reads my mind or loves diseases...just one who, inspite of his fear of sicknes, disease, hospitals and goop overcame all of his fears and chose to love me anyway.
He is not perfect (goodness no)and he makes me so mad I could spit some days...But he is here because I finally gave him a chance. After pushing him away for so long, refusing intimacy, sex and explinations for 10 years he came back and stole my heart...he was not in my plans...I planned to grow old alone...not to risk love or rejection...didn't matter...he walked into my hospital room after our first date (yup, I got sick on our 1st date and ended up having emergency surgery 1 week later that left a 4inch hole in my groin)...I was pretty sure that I would never see him again...but he showed up with a bouquet and looked the other way the whole time...and came back again and again (3 more ER surgeries in 6 months including a full pouch revision)...then I could have sworn he was gone for good...and another bouquet...13 years later he is still here and although he complains when my messy pouch leaves souvenirs around the bowl or spots the bed... he cleans them up. (very embarassing!)...
Don't expect perfection...no one is. Don't raise the bar so high that no one can reach it...just start by letting someone in long enough to get to know you a bit...guys don't usually care too much about all the crap that worries us...they just want a nice, loving woman to reassure them about their own insecurities...
Sharon

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×