Skip to main content

I had my first flare up three months after my jpouch surgery. I was put on Cypro for two weeks and felt great. About three days after being off I started to feel symptoms again, so my doc told me to up my probiotic, which helped. Three months later, I have another flare. Cypro again for two weeks feeling great, symptoms are back within three days, so I was put back on cypro for another two weeks. I was feeling good again. Three days off, now I’m having very loose stool, major burning before and after going, more frequency, and my appetite is barely existing... I feel like shit. Thoughts? Ideas? Help!  

Original Post

Replies sorted oldest to newest

Are you still taking probiotics? Were you taking the probiotics between the flare? What probiotics are you using? I am usually put on Cipro and flygal maybe you need that to fully get rid of pouchitis, with it's return so quickly I would say that you aren't on antibiotics long enough or they are not doing enough on their own.

I was going through something similar, I am now taking Visbiome, twice daily. I am hoping this will stop the reoccurrence, I was having success with just once a day but no longer. My doctor still has concerns and we will be going there once covid is not such an issue. I never have much of an appetite and it gets worse when I am on antibiotics.

Bloesch, some of us (like me) simply have to stay on antibiotics all the time. Before you do that, I’d suggest seeing if everything short of that might be sufficient. If I were in your shoes, I’d try a maximal dose of a strong probiotic (e.g. Visbiome Extra Strength, 4 packets per day) plus a course of Cipro + Flagyl. I’d stay on that probiotic dose as long as you can, but it does get very expensive. Good luck!

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×