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I will most likely be getting a permanent ileostomy because of a number of different problems with my pouch. My surgeon said to me before that if I'm getting a stoma it should decide whether to disconnect or remove my j pouch. Could anyone give me any information on what would be the better choice?
Thanks
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Mark, that's a really good question.  But it is also a very personal choice to make, and certainly not an easy one.  I think you have to weigh the consequences of both.  And talk to people on both sides of the street.  My immediate thought is if you are getting a percent illostomy and there is no possibility of ever going back, then remove it because,it is diseased and could cause more problems down the road.  But either way, you have to think long and hard before you make any life altering decision.  Good luck to you, I would not want to be in your shoes.  

mark

cruise through the various forums and you will pick up this topic.  there has been much discussion on the dilemma--both for and against.  in the end it is a personal decision that must be taken within one's own context.  

 

I'm in the same situation and have opted for a k pouch.  that choice isn't for all, but hopefully it will work for me.  good luck,

I am having it done on November 9th.
My surgeon will not  leave it in. 
No reason to.
It doesn't work now.
It won't work later.
Personally.  I don't want it.
If there is a possibility that it can create urges to go.
It's gotta go.
I have constant urges to go day and night.
I have had this problem.... Along with many others since it was created.
I am losing my sanity from it.
Richard.

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