I have posted on here a few months ago about deciding to get surgery or not.   After much thought, I have decided to schedule it and it is coming up at the end of September. 

This specific flare I am in right now has been odd.  I have been on Stellara which put me in remission for a month, and then came right out of it which has lead me to deciding to get the surgery.  This is the first flare out of 8 years that I am on zero medication.  I have decided to no longer take vitamins, supplements, steroids, or biologics knowing I am getting the surgery.  I have been flaring for a few months now but the past few days I have barely run to the bathroom, and yesterday I had a normal bowel movement.  WHAT IS GOING ON?! This has never ever happened in my 8 years of this disease.  I am on no special diet and taking zero medication and have been flaring for months. I just had an accident in my car last week, and now this week my body is mysteriously putting me into remission?

What do I do about this surgery in 30 days?  Has anyone experienced this, or had the Jpouch surgery while in remission?  There is a reason this timing works for surgery because I want to try for a baby next year and I don't want to be sick for my wedding next August. Everything is planned out, and now this?!?! Help! 

Original Post

UC is a “relapsing/remitting” disease. It comes and goes for most people without an identifiable cause, but the human mind is eager to try to make sense out of the pattern. There is surely a causal process, but it’s operating obscurely at the cellular and molecular level, largely indifferent to our coarse actions and unreliably responsive to treatment. We imagine dietary causes, miracle cures, behavioral and mood effects, etc., because being a leaf in the wind is uncomfortable, and because the comings and goings of the disease seem like they have to be related to other events that we perceive. But we are all essentially leaves in the wind as far as the ebbs and flows of UC are concerned.

Remission is the very best time to have J-pouch surgery. Your gut will heal better, your skin will heal better, and your strength will return faster. Remission makes us fantasize about the possibility that the disease is gone forever, but the cancer risk keeps increasing year by year.

I hope all goes well for you. J-pouch surgery is a hard road, and you need to be prepared for potholes that you can’t see until you hit them, but for most people who have severe flares it’s better than a UC-afflicted colon.

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