I am getting close to starting on Remicade. Right now I am in the setting up / scheduling part of the process. It could happen within a week or two.
Any advice or comments before I start? Is it worth whatever risks lie ahead? I was told I will be doing the infusions at 0-2-4-8 week intervals. Once I hit the 8-week interval, it would continue at that indefinitely. I am still a little skeptical, I suppose because I function well a lot of time but I am living without a large intestine and I have been told by 2 GIs that my small intestine is inflamed.
In other words, I have learned to live with my situation well over the past 19 years. For the most part, not much has changed. Just a lot of aggravation, frustration, and dealing with it the way I always have.
Any input is appreciated.