They help me but I cant afford them. I can't find any coupons out there. Does anyone know of any? I have insurance but the co pay is so high.  The antibiotics aren't working anymore, I'm so frustrated. Cipro and flagyl worked for a long time. I don't know what else to do.  My scope wasn't that bad, they will check again in May. What other treatments are there?

Original Post

Are you prescribed generic? These should not be very expensive. Rectal mesalamine is expensive, as there is no generic (yet).

Jan

Are these the enemas or suppositories? I suppose the enemas are more expensive, but even those should be a formulary item with a regular copay. However, if you have a high deductible plan (like I do) you pay full price until you meet your deductible. 

Jan

They are suppositorys. Yea I have to met my deductible. I got them anyway. $319 for 30. �� But boy do they help. 

Thanks Jan

If it makes you feel any better, I satisfied my deductible AND out of pocket maximum of $6800 before the end of February. The good news is no more copays until next year.

Jan

Last edited by Jan Dollar

The cortisone suppositories were helpful to me, but Dr didn't like as a permanent long-term solution-worries about the rectal area "thinning" over time with all that exposure to topical steroid. Unfortunately my pouchitis always eventually came back once I tried to wean off the suppositories.

Other treatments for chronic refractory pouchitis can include Entocort (a designer non-systemic oral steroid), rotating other antibiotics (Levoquin, xifaxin, augmentin), Immuran or 6MP, or a host of biologics (humira, remicade, entivyo). Or a combination of the above. I'm doing great now rotating Levoquin and xifaxin AND taking immuran.

Have any of you tried tacrolimus suppositories? Had to be compounded but I think it helps with my cuffitis. 

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