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They help me but I cant afford them. I can't find any coupons out there. Does anyone know of any? I have insurance but the co pay is so high.  The antibiotics aren't working anymore, I'm so frustrated. Cipro and flagyl worked for a long time. I don't know what else to do.  My scope wasn't that bad, they will check again in May. What other treatments are there?

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The cortisone suppositories were helpful to me, but Dr didn't like as a permanent long-term solution-worries about the rectal area "thinning" over time with all that exposure to topical steroid. Unfortunately my pouchitis always eventually came back once I tried to wean off the suppositories.

Other treatments for chronic refractory pouchitis can include Entocort (a designer non-systemic oral steroid), rotating other antibiotics (Levoquin, xifaxin, augmentin), Immuran or 6MP, or a host of biologics (humira, remicade, entivyo). Or a combination of the above. I'm doing great now rotating Levoquin and xifaxin AND taking immuran.

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