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Hi all

I had my J pouch for over 10 years now and have coped well and been able work and basically function like a normal person (with added toilet trips), although I have always had some bleeding from my pouch and always had some inflammation.

I had tried pro biotics tindazole and ciprofloxacin etc but they did not seem reduce the bleeding, and as my pouch functioned well I just carried on with life.  I decided to get a check up as been over 5 years since I had a camera check up and have now found that I have a 1cm pedunculated polyp in my pouch and my pouch is also a bit ulcerated.  I had biopsies taken and awaiting the results but have been searching for info on polyps and now terrified that the polyp may be cancerous as everything I search for online regarding polyps mentions that they basically turn to a cancer,  I see the polyp on camera and it was pale looking and smooth but also wondering why the doctor didn't remove it at the time and wanted to know if I should ask to have it removed asap.

Any advice is greatly appreciated, trying to keep calm but worried out my mind and now have a 2 to 3 week wait for results, I am scared to go get the results in case its bad news and finding it hard to concentrate on work and day to day life at mo.

 

Last edited by nevebrown
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Over the 30 years I had a J pouch, my GI found a number of polyps in my pouch and always removed them during the exam and had them biopsied. None of them were cancerous. I received the biopsy results in less than a week.  I suggest that you become proactive and ask your doctor why he did not remove the polyp at the time of the exam and to get the biopsy results to you sooner.  You should also inquire about having more frequent scope exams if your situation warrants it.  It is likely that your doctor felt that your situation did not warrant faster action, but it would put you more at ease if he would provide you with more information.

Thanks for the reply.  I'm in UK and here it's hard to get appointments to speak to the consultants who perform the scope exams.  You basically get a slot for a scope examination then have to wait untill you get another appointment to talk about the results with a consultant.  After the scope exam the consultant said he would see me once the results are back so have to wait basically I was a bit in shock after seeing the polyp and didn't know what questions to ask at the time but now I have had time to search up on polyps I realise they need removing asap.  Hopefully my appointment will come through soon and I can ask if it could be removed.

 

Thanks for the reply

 

Pedunculated polyps are usually of no consequence. They are easy to remove, and most commonly that’s what an endoscopist does, but it’s not something to worry about. Your chronic bleeding is of greater concern, since it’s not being treated. Bleeding is more common in cuffitis than pouchitis - hopefully your doctor will suggest a diagnosis and treatment. The ulcerations could be related to pouchitis or cuffitis, depending on where they are located. Since you describe no symptoms other than bleeding, it will be hard to tell if a treatment is working on anything else (like the ulcerations).

Thanks Scott

My pouch was always bleeding from when it was created over 10 years ago it was ok for about 2 months then I noticed the blood.   After 4 years of scope exams and trying what's the consultants advised nothing seemed to clear the bleeding up and I kinda felt nothing else could be done so just lived with the bleeding.  I guess I should have persisted with my check ups as they would have noticed the polyp sooner.  I just hope I have not left it too late. Thank you all for the advice and just knowing that others have been through similar makes me feel at least I'm not alone as I don't know anyone else with a pouch over here in UK who I can talk to.

 

Thanks again 

 

I am same as BillV, in 26 years had many dozens of polyps removed from my Pouch, all were biopsied and determined to be inflammatory polyps of no consequence. I have had chronic pouchitis and I don’t even recall an annual scope where they didn’t find one in the 26 years. I don’t think you need to worry, unless the pathology report comes back with something to worry about, which is unlikely.

Thanks again CT.  It was all a bit of a shock to me to be honest as I hadn't even heard of polyps growing in a J pouch before my scope and when I see it on camera I just freaked out a bit.  Now I  have heard it's not completely abnormal I feel a bit better and I'm going to stop searching info because some of the stuff I'm reading just worries me.  I'll just wait see what my results are and obviously start sticking to my check ups from now.  Thanks again 

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