I was wondering if anyone else had primary sclerosing cholangitis. Another autoimmune disease associated with ulcerative colitis. I have had it since 2002.
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I do. I have been diagnosed since 2017, when they also found displeasia in my colon, which was then removed, then pouch in 2018. I am not on the liver transplant list as it is staying mild. But I do very regular blood tests and MRIs so that the doctors keep a close eye on it. So far ot has not advanced too much. What about you?
Thanks for responding. We hit the wrong lottery. I do exactly the same thing. Blood tests and MRI and ultrasound every 3-6 months. Lately feel so fatigued and my urine so dark I find it hard to function but my hepatologist doesnt seem too concerned but its so frustrating. Do you take ursodiol for the bile flow?