Prostate Cancer Cures and J-Pouch

Hello All:

I was diagnosed with an aggressive form of prostate cancer. I have a J-Pouch.

I am 74 years old, have had my J-Pouch for almost two years, in good health and the pouch is working fine; bowel movements about 4 times a day and I can consume almost anything (except a double Johnny Black and water ) with out a problem. I exercise, play golf and am very active.

Because of my PSA Test (9.4) and a biopsy (two Gleason scores of 9) the urologist recommends I take action to stop and eliminate my aggressive form of cancer.

The urologist said I have two options; total removal of the prostate or radiation. Although total removal could cause less damage, either approach may damage the J-Pouch resulting in possible incontinence. This is a major concern for me and I am looking for alternatives.

I am going for follow up tests, bone and ct scans, this week and am scheduled to see an oncologist, after these tests are complete.

I am considering doing nothing and taking my chances.

I ask if anyone has experience with this type of issue I am confronting. I ask for advice.

Thank you

Nick

12/20/209:57 AM

❤️ 0

Original Post

Replies sorted oldest to newest

Lauren Of Emerald CityMember

OMG!!! I am sorry to hear that!!! I would get the prostate out ASAP, please do not do nothing, I personally would get that prostate out immediately!

Good luck with everything and let me know how everything goes.

12/20/2011:51 PM

❤️ 0

WinterberryMember

Hi, Nick.

I remember when you first posted on this site a few years ago and how you moved from asking lots of questions in order to learn about your upcoming j pouch surgery, and then coming though that surgery to recovery.

I am sorry to hear about your current diagnosis. It is serious and you are right to approach it calmly and thoroughly, and to keep moving forward with medical appointments. Wait to see if anyone here with actual experience with prostate cancer will come across this post and share with you what they know. It might take a few days during the holiday season, so give it some time. It is good that you have appointments scheduled for scans and to meet with the oncologist. This will arm you with medical information and knowledge. Develop a list of questions before each appointment so you can ask them. Write things down so you don't forget anything crucial. They will become your new medical team; absorb what they tell you so the information can help you come to a sound, thoughtful, and careful decision that is right for you. I hope you get a reply here soon.

12/21/207:29 PM

❤️ 1

CTBarristerMember

@Winterberry posted:
Hi, Nick.
Wait to see if anyone here with actual experience with prostate cancer will come across this post and share with you what they know. It might take a few days during the holiday season, so give it some time. It is good that you have appointments scheduled for scans and to meet with the oncologist. This will arm you with medical information and knowledge. Develop a list of questions before each appointment so you can ask them. Write things down so you don't forget anything crucial. They will become your new medical team; absorb what they tell you so the information can help you come to a sound, thoughtful, and careful decision that is right for you. I hope you get a reply here soon.

I agree with everything Winterberry wrote above. Good luck Nick.

12/21/207:36 PM

❤️ 0

mike1941Member

Nick

j pouch since 1984. Prostate cancer diagnosed in April 2007. Radical prostectomy completed in June 2007. Original j pouch completed at Mayo in Rochester Minn. I decided to return to Mayo for the prostate surgery since they understand the proximity issues with the j pouch. All went well regarding both the prostate removal, and preventing any issues with the j pouch. I am currently 73 years old.

you might consider a similar strategy, as part of your options by utilizing the institute that did your j pouch.

good luck

mike

12/21/208:16 PM

❤️ 0