Hello All-
It's been a while since I've posted and I could really use the collective experience out there! I'm just about 23 months post pouch creation surgery, 20 months post take down and can't stop pooping! My surgeon, after trying everything in his bag of tricks, has thrown up his hands and sent me back to my GI. My GI has rerun standard battery of tests (c. diff., gastric over-population, gluten allergy/intolerance, lactose intolerance and about 6 others which I don't ever remember) and found nothing significant except a moderate lactose intolerance.
I have intermittent periods, once or twice a week, which last anywhere from 8-16 hours when I will have a BM every 3-5 hours. I could live very happily with that frequency but then the other shoe drops and I'm back to my new normal, 20-30 trips a day. I'm currently taking 2 lomotil, 2 loperamide and 16 drops of tincture of opium 4 times a day. The opium seems to have brought the pain and crampiness which accompanies my BM's under control, but doesn't seem to have made much of a dent in my motility.
If anybody out there has any suggestions, I'm all ears.
Thanks in advance for your help!
Trevor
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