Hey all: Had my J-Pouch surger(ies) in 1996. Things have gone pretty well since then. Couple bouts of pouchitis and, recently, had my first quite-simple procedure to widen (via balloon) a narrowing at the top of my pouch.
Here's my question - I have not been able to get completely off prednisone in all this time. I take 5 mg a day. And yes, I do have osteoporosis. But...when I try to get off the prednisone, my GI system just gets too "wonky" - tight and uncomfortable. I am wondering if any other post J-Pouchers have had similar experiences. Thanks.