Skip to main content

Hello All,

I had my pouchogram this morning and the radiologist told me that I had no strictures or leaks.

My next step is to schedule reversal surgery with surgeon several weeks from now.

I know it’s probably been discussed here before but what are the early days with the jpouch like after takedown?

thank you,

Eric

Original Post

Replies sorted oldest to newest

Congratulations! Everybody's experience is different, my experience: lots of fatigue, lots of bowel movements( around 40), lots of weight loss, lots of leakage with accidents when sleeping- USE DIAPERS, lots of excruciating butt burn- GET CONVATEC SENSI SKIN BARRIER CREAM, lots of decrease sleep!!

After getting use to it, BMS decreased by half, better quality of life, still less sleep but I am at peace almost 7 years later

Things might look dark but the light is at the end of the tunnel and you will reach it do not stop walking

I had a lot of issues with butt burn and pain in the anal area from gas.  I ate lots of mashed potatoes, which helped thicken things up.  It's a lot of trial and error.  Luckily I never had to wear diapers.  I had one accident in bed, but it wasn't a huge deal (just a bit and I was able to run the bathroom).

I never really lost weight.   Like Lauren said, everyone is different.  It sucks at first, but even though I'd rather have a healthy colon, I'm much happier now.  

@Disneynut posted:

I had a lot of issues with butt burn and pain in the anal area from gas.  I ate lots of mashed potatoes, which helped thicken things up.  It's a lot of trial and error.  Luckily I never had to wear diapers.  I had one accident in bed, but it wasn't a huge deal (just a bit and I was able to run the bathroom).

I never really lost weight.   Like Lauren said, everyone is different.  It sucks at first, but even though I'd rather have a healthy colon, I'm much happier now.  

AWESOME!

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×