So at my most recent pouchoscopy last week, my doctor saw consistent inflammation throughout my pouch, continuing 40 cm above my pouch. My biopsy results came back with nothing abnormal, other than confirming the inflammation. My pouch also showed signs of shallow apthous ulcers, but according to my doctor, neither the ulcers or inflammation is severe at this point. This is consistent with the scope I had back in August as well. Since August, I've been on a consistent dosage of Cipro, which has been able to manage my symptoms back to "normal". However, my GI, after this most recent scope, is talking about changing my diagnosis to Crohn's given that the inflammation goes farther up above my pouch (rather than terming it backwash inflammation).
I'm curious what other's experiences are with regards to their possible change in diagnosis, response to treatment, treatment plans, etc. I'm very resistant to a change in my diagnosis given that my doctors were certain it was UC before doing my JPouch, a family history of UC (not Crohns) and my responsiveness to the Cipro.
I understand that for treatment, my diagnosis may not matter, but it does impact other things (one just being my mental state).
Any thoughts/insights from others who have experienced this are appreciated.