Pouchitis two months after take down

No. It doesn't mean that he'll have chronic pouchitis. He may have this one bout and never again. Some people occasionally have pouchitis but it's not chronic.

He should be taking probiotics. He can take them while on antibiotics but he should take them midway between antibiotic doses.

I don't think that people usually get pouchitis a year or two post surgery. Some people get it right after surgery and some people never.

If his symptoms return once he's off the Cipro make sure to let the doctor know because your son may need a longer dose. You can also ask the doctor about weaning off the Cipro by slowly decreasing the dosage so that it can be adjusted if the symptoms come back.

kathy

Hi Liz

I developed pouchitus almost straight away after my takedown and suffered severely with it for about six months. I discovered that cigarettes surpressed the pouchitus. Did your son ever smoke?? If you google "smoking supresses UC & pouchitus". Worth a read! I have now been pouchitus free for two years and am now trying to find an alternative to smoking as not a long term cure for obvious reasons. The trouble is I'm terrified the pouchitus will return again!!

I tried VSL#3 probiotics before I started smoking again but didnt notice any improvement

Thank God for the internet!!

Regards & good luck Rupert

What are pouchitis symptoms ur son had?

Rupert. You are absolutely correct about the smoking. My colon was within hours of bursting when I went to the emergency room. I had just quit smoking a month before and my doctors told me that the smoking had been masking the problem for months and after I quit I started noticing the symtems. So I know for a fact that smoking does tend to mask colon problems

My son has had his jpouch for 10 years (had surgery at 2 years old) and has had chronic pouchitis for most of that time. He is on cipro/flagyl and cannot get off of the anti-biotics. Every time we try to ease off he has a pouchitis flare. Very frustrating. I hope your son does not get this problem. Where do you live? I have just starting searching for other kids with jpouch. My son will be 12 in May and we live in the Boston, MA area. Best of luck to you and your son.
Tricia

quote:

My son has had his jpouch for 10 years (had surgery at 2 years old) and has had chronic pouchitis for most of that time. He is on cipro/flagyl and cannot get off of the anti-biotics. Every time we try to ease off he has a pouchitis flare.

Same thing with me except it has been 18 years of chronic "simmering" pouchitis and treating it with antibiotics due to the failure of numerous other attempted treatments. I hope he is cycling antibiotics. I rotate between cipro/flagyl, xifaxin, and augmentin. The "Fantastic Four."

My son was checked in dec 28 and didnt have pouchitis. He is 9 and in june been a year he had colon removed. He says while he sleeps he dont feel when he wants to.poop and he ismhome wchooled cause he hasnt gone back due to the pressure he feels.always to.use bathroom. I dont know what to do. Doctors say it gets better.

I developed pouchitis about 6 weeks after takedown. The Cipro was amazing, but once I was off of it, the pouchitis came right back. I unfortunately have had it chronically for almost 3 years now. My doc did tell me that getting it so early and then relapsing again after treatment does put you in the "more likely" category to have it chronically. However, I wouldn't worry about that yet! Some people get it early once and never again.

Even those of us who have to stay on antibiotics generally do fine. It's unsettling while you're searching for what works.