Hi All,

Well, I was scoped on June 12 and confirmed as having mild inflammation of the pouch. I had already done a 10 day stretch of Cipro and the Doc gave me another 7 day dose. The day I came off I called in as the symptoms had decreased somewhat but were still present and I have to travel this coming Wednesday. I told him I was worried and he called in another 7 day dose of Cipro I was to take in my symptoms came back...this was last Thursday. On Saturday they came back strong and I started the Cipro and today I am still very fatigued and have urgency and bad butt burn. I intend on calling the GI in the a.m., but do you all think I should cancel my scheduled training for later this week? It's a three day, intense course which is out of town? My better judgement is telling me to square away my gut first...

My pouch was doing well for being so new (8 months), the last month has been rough. Is this normal?

Mark
Original Post
What kind of training? If the antibiotics get things squared away then it seems like it would be okay to go. Since your symptoms come back once you go off the antibiotics it sounds like you need a longer course and/or you need to try probiotics to try to keep the symptoms away. However, if you think you should cancel the training then you should probably listen to you.

Is it normal? Probably not. But it could just be an anomoly and things could get back to normal.

kathy Big Grin
I was scoped in June after a year of constant antibiotics with two weeks off prior to the scope and inflammation was also found (according to GI --all people with pouches has some inflammation in them). He suggested I need NOT go back on antibiotics and I have half-heartedly followed his advice as my symptoms return also when off them. I oscillate between missing a few days and then taking some intermittently when the symptoms get worse (prob not a great way of managing it). I also struggle with chronic cuffitis/hence butt burn which is very annoying.

My biggest pouchitis complaint is ALWAYS feeling like I have been hit by a truck in that every joint and muscle in my body aches and it is like having the flu 24/7. In your case if you are having increased and bothersome symptoms it does make sense to stay on the antibiotics longer and I would think that you may want to postpone anything that would put more stress on your body when you are recovering and trying to feel better.

I am seeing my GI to talk about possible other medication options like enocort today for my pouchitis because after a solid year of dealing with this, I am ready to either yank the pouch or try some stronger treatment options.
quote:
I am seeing my GI to talk about possible other medication options like enocort today for my pouchitis because after a solid year of dealing with this, I am ready to either yank the pouch or try some stronger treatment options.


Let me know how that chat on Entocort goes with him, because I suspect he and I will be having the same discussion in the next few days. I am curious to know if Entocort is anything like Prednisone. I have never taken Entocort.
In my experience, Entocort is nothing like prednisone. They are night and day. I was lucky and the Entocort worked wonders on me. I was on it for four years. I had non of the nasty side effects that I did on prednisone.

It didn't cause me anxiety, joint aches, insomnia, weight gain, moon face-nada. I would never have believed I was on any sort of steroid. The cortico-part of it makes a world of difference.
Thanks for the input tammykathleen. I tolerated Prednisone well when I took it sporadically from 1972 to 1992, but it did make me get a Moon Face, increased my appetite (which has historically been better than good even without prednisone) and worsened my chronic insomnia. Those were the only issues I seemed to have with it. It seems like Entocort is not quite as harsh on the body as Prednisone.

Stomac, it sounds like you need a longer course of antibiotics. You took them for only 7 days, I have taken them for 17 years continuously, until basically finding out I reached the end of the proverbial road last week.

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