Pouchitis or crohns....?

mussenMember

Hi, I am nearly 6months post op and am having some confusing issues. Just wonder if anyone has had anything similar..
At the end of last year I started getting uncomfortable abdo and wind (very unusual for me)
Blood test showed inflammation etc and I developed erythema nodosum on my legs. My G.P started me on Pentasa and symptoms cleared up (except my legs)
went and saw my gastro doc, had flexi sig/biopsies, but she is unsure if its pouchitis or crohns. (plus two of her collegues have opposite opinions)I was on cipro for two weeks but didnt notice much difference as pentasa helped the symptoms?
Bloods are looking a lot better and erythema nodosum is clearing up well. Doc said last week to drop a pentasa dose, but I found symptoms returning.... so went back to previous dose but will try again soon.
So just wanting to know if anyone else has been through anything similar? Any ideas/suggestions?

Thanks
M

3/12/1312:17 AM

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Jan DollarModerator, RN, retired

I would think that the additional symptom of erythema nodosum would point more toward Crohn's, but it is common with UC too. This could also be a UC type thing, as it would respond to Pentasa. If it is confined to the pouch and not in the prepouch ileum I would be more inclined to say UC over Crohn's. But, either way, it sounds like some form of IBD. UC or Crohn's, not sure that it matters.

Jan

3/12/1312:27 PM

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mussenMember

Thanks Jan,

It's not entirely confined to pouch. next step is to look from the top. Just hate being in limbo with it all. At least I'm not actually getting many symptoms etc at the moment.

M

3/13/132:21 PM

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