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So discouraged.....I can't seem to get off of these darned antibiotics!! I was on Augmentin for about a month last June and I felt really great. I went off of it and then a week later the symptoms came back and I went back on it again. This time it didn't work so well, but it I felt okay. A few weeks ago the bleeding started again, a really sore tuss and uncontrollable diarrhea. So this time I went on Cipro and I felt great. I've been off of the Cipro for 4 days and today the bleeding and diarrhea is back again. I had a scope a few weeks ago after being on Cipro for a few days and there was irritation and signs of pouchitis. Why won't it go away....any suggestions?

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I'm sorry you are going through this especially with Christmas here.  You could try and see if your GI can get you either a stronger antibiotic to try and knock the pouchitis out or you could get a combination approach with Flagel and Cipro.  I know that works for some people, but for me the Flagel makes me nauseated. You might also want to discuss with him/her the idea of a biologic to keep the pouchitis at bay. Entyvio has helped me a lot.

Hopefully you can get something called in yet today to get some relief. Wish I had a magic wand to make it all go away!!


Probiotics, Visbiome or vsl3. I couldn't get off antibiotics, eventually I started on vsl3 and moved to Visbiome and taking one packet a day usually keeps me of antibiotics. Occasionally I need to get back on antibiotics but often enough I can tell that something is off and I take probiotics twice a day for a week and I don't need the antibiotics.

Also maybe Cipro is not enough, I always get that and flygal. The way my GI talks I'm surprised everyone doesn't just use both to make sure.

Come to think of it, I'm gassy as well....I sometimes have  night time leakage even when I'm on antibiotics, but more so when I'm not. I'm wondering if I should speak to my doctor about being on another biologic...right now I'm on Remicade and it looks like I'm going to have to be on antibiotics for the rest of my life.

I wouldn't say that they are necessarily connected. I never need to pee when I have pouchitis, I wouldn't expect it to be much different for you. When you are flaring with pouchitis you are more likely sending any extra water you have out with a bowel movement. Pouchitis is also likely to cause your body to actually absorb less water, so having to urinate more means you are dehydrating more. It's only when I have been on antibiotics(after a flare) that I start needing to pee without a bowel movement. I don't know if that is slightly different for women and men?

Insomnia is more likely, although it's probably more of a by product of feeling unwell and just not being able to sleep or worrying about your health so you aren't sleeping.

I don’t think pouchitis directly increases urination for most of us. Some of us choose to urinate every time we have a bowel movement, and pouchitis certainly increases the frequency of those. Sometimes the sensation of fullness in the pouch can be associated with a sensation of fullness in the bladder (or vice-versa). And sometimes our water drinking habits will change when other things are going on with our bodies. Our bodies will each have unique (and sometimes confusing) ways of delivering these messages to us.

Last edited by Scott F

Thankyou for all your replies. I can relate to most of them and a lot of  your replies are good to hear. Things that a doctor would never tell you or wouldn’t know. I’ll have to work on my bladder probs. Never had an issue with UTIs until bowel surgery. Somehow I feel there might be some link between the two. I’ll write a check list for what you all have offered as being symptoms for Pouchitis and keep an eye on myself.  Cheers Francesca 🌷

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