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anyone have clean pouch tests with no inflamation but diagnosed with pouchitis because of symptoms..was amystery to me always..

dr shen explaned his findings as such..when we have jpouch operation a valve to keep bacteria from going back into small intestine removed..in most cases of jpouch not a problem but with some such as mine i am having it leak through because of missing valve..thus the overgrowth of bacteria..

we asked him how many of his jpouch patients so far fall into that group ..he said about 100 he has identified..

now what does that mean well it might explain why i never had symptoms of fever,fatique,joint pains but did have increased frequency,feelings of not emptying and the god awful feeling of having brokem glass coming out when i went to bathroom and burning..and still had a pouch that looked good..

and why it might be ultra important to avoid sugar since it feeds bad bacteria ...which i now take seriously..

and maybe have the probiotics be even more meaningful..but granted he did not talk about probiotics..(i have taken lactobicillus and bifido plus florestor for a few years thinking since i take antibiotics and have had cdiff good insurance in past)

he had me switch from my rotating antiobiotics to belladonna/opium suppositories..he would recommend for pouchitis and overgrowth actually..

gave up my antibiotics three days ago after a week or so on antibiotic and B/O..

will update my progress..

rebe
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Rebecca, I am curious as to why Dr. Shen has you on B/O whereas other patients of his have indicated he wanted them on lactulose for bacterial overgrowth. Since bacterial overgrowth has also been indicated in my case and my GI is a mentored disciple of Dr. Shen, I will speak to him about it. Let us know of your progress with this new treatment.

BTW, what is Shen' reasoning in using the B/O suppositories to treat the bacterial overgrowth?
do not know why he recommended b/o instead of lactolose...but that is what i am trying..to my amazement so far working only about 4 or 5 days now ..but promising because in past if i were off my antibiotics one day i was toast..will keep updating..this could be a breakthrough of sorts right?

also not sure why b/o suppose to work but i will have to listen to my taping of our meeting..by the way it was my husbands idea to tape meeting after my exam..and it was right on mainly because i am still so out of it from drug they give you for exam i remember nothing!!dr. shen did not mind and because so much gets discussed its really a recommended idea i would like to suggest expecially dr.shen patients where he is so willing to explain so much..

it may be too early to tell yet but i think anyone with bacteria overgrowth might want to inquire about b/o

rebe

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