I have been a reader but i never write anything, otherwise here i am.
Im 22 years old and been diagnosed with uc at the age of 15aporx. I have remove my colon in 2011 in 3 op and have the j pouch since then.
I was fine until november 2015, it started with a small pouchitis but it went out of control. My weight was 60kg and i lost about 15kg, ended up 2 weeks in the hospital. I spend new year in the hospital until the start of January. In january i started with humira , and im taking 1 aplication every two weeks. It worked fine but i still need to be better, so in september 2016 i started with azathioprine in a low dose.
I never recover like before the pouchitis, im waking up 3 or 4 times at night and i usually wake up 1 or 2. I use loperamide sometimes , it works, but its not a big thing
This last two weeks i cant hold it when i wake up in the middle of the night and i cant reach the toilet. My doctor says to start with entocort pills everyday with bactrim twice a week, but i have other doctor that told me to use suppository. Do you know anything about entocort??? I dont want to take more drugs so i am considering in the suppository
On another hand, Does anyone tried cannabis oil? i am getting some from uruguay to try