Long-time lurker here, with a long-time pouch: I had my surgeries 25 years ago, when I was nine. My diagnosis, given six years before that, was UC. Now I'm wondering if that's about to change.
Biopsy results are still pending, but my most recent scopes showed all kinds of unpleasantness, from "nodular mucosa in the gastric body" to pouch ulcers and anal stenosis. I assume things are now moving in a Crohn's-ish direction and would appreciate stories from anyone familiar with such results. An H. pylori test was negative in January but will be checked again with the new biopsies.
A CT scan earlier in the year was clear and an MRI from a few weeks ago was fine. I've had pouchitis and cuffitis in the past and recently switched GIs after my last doctor showed no interest in figuring out why I'd lost a dangerous amount of weight in a short time and was suffering from terrible nausea (along with diarrhea that left me so dehydrated I've needed IV fluids twice).
Thanks for reading!