Pouch, thyroid surgery, and difficulty emptying ...and coffee ? (maybe)

supercrunchMember

I have had my jpouch for 11 years without a single issue (had UC prior with no sign of crohns). I had my thyroid removed 4 weeks ago due to papillary thyroid cancer and started replacement thyroid hormone. Since the surgery, I have had periods of difficulty emptying my pouch...feels like it stops short and there is trapped gas, and a feeling like it is out of sync with my bladder and emptying my bladder takes some effort too. The first time it happened, it resolved in about 4-5 days and I assumed it was done, until now.

I did notice that both of these periods of time when my pouch was being obnoxious were periods when I was out of my normal routine. Once during surgical recovery at home and now after a vacation. Both times I had not been having my usual morning coffee. Any chance that alone could be the issue? Could thyroid meds cause pouch issues? I'm not sure what to think.

8/21/1710:35 PM

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Scott FMember

If you're not getting enough thyroid replacement then constipation is very common. It's also possible for the replacement thyroid hormone to cause diarrhea and/or abdominal cramps.

Maybe get tested to see how the hormone replacement is going? It can be tricky to get the dose right. Good luck!

8/22/178:45 AM

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Jan DollarModerator, RN, retired

If you are accustomed to daily coffee, it can definitely make a difference if you stop it abruptly. And yes, your thyroid levels can mess with your gut. Makes sense to have your levels checked.

Jan

8/22/176:50 PM

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CeeeeCeeeeMember

My gastroenterologist recommended Metamucil because he calls it a bowel regulator. If you're constipated, it helps move things along. If you have diarrhea, it bulks things up. Also, if I'm having a hard time passing stool I eat an apple....skin and all. It works for me! I swear by either product (apples/Metamucil) when I'm having changes in my typical elimination experiences! Best wishes!

8/26/178:30 PM

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supercrunchMember

Thank you all so much for your advice. I gave up on Thursday and called my surgeon, who thinks I may have pouchitis or cuffitis. She put me on Cipro and I have an appt in two weeks.

After one dose of Cipro, I could fully empty my bladder again in one sitting and my abdominal pain and gas pressure was gone. Now on the third day I can empty my pouch much better, and sometimes fully. I think we're on the right track.

8/26/1711:58 PM

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Jan DollarModerator, RN, retired

A quick response like that pretty much tells your story. Hopefully, by the time you have your follow up appointment it will be taken care of. Glad you are improving.

Jan

8/27/175:29 PM

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