Well after 22 years with my J-Pouch done by 5 of the best at CCF starting to have some mechanical problems...It's been a good run and I'm hoping for 22 more if that's possible but lately my health has headed south. They initially diag. UC but after 20 yrs of strictures and obstructions and ulcers in stomach etc. etc they came to conclusion last year it MAY be CD...that's a big MAY. No granulomas in pathology but Surgeons in Houston Methodist say if it looks like a duck and walks like a duck...It's a duck ??? So confused about many things. I'm going back to get my plumbing serviced Jan but docs here say I don't have enough blood supply from mesentery for complete revision. They did manogramy and the funny thing was my pouch is so enlarged or nerves are so dead I fell asleep on table while they were blowing up balloons. They said I should have been screaming to get off the table and run to bathroom!! Anyhow, to make a long story longer I would like to know who here has had a pouch revision, after how many yrs with the pouch and why they thought you may have been a candidate and sorry one more question how the heck did it go????
All I know is I've had to use extreme measures now to evacuate my jpouch completely every night and energy level very low not to mention stints in hospital for twisting of pouch starting to wear on this old-timer with a 6yr old to run after. Need some good advice???
Thanks everyone!!