My GI doctor and surgeon have now conferenced and decided that my pouch is failing. They call it dyssynergy. A MRI showed I have no muscle activity operating down there. It’s all just what pushes from my stomach and moves through on it it’s own to evacuate. Before all the tests, the surgeon originally pushed for pelvic floor therapy. But the GI doctor doesn’t feel confident about it. And the surgeon has agreed. So my options are
1. Have the pouch removed and go to an ostomy and bag.
2. Travel to the Cleveland clinic and try for a pouch redo.
3. Just put up with it for as long as I can stand provided I can get back to any semblance of a normal diet or lifestyle
I‘ll be 60 next year. I’ve had a hard battle with this pouch now for 30 years. Especially these last 10. Pouchitis. Sepsis. Major pain from antibiotics and gas. At last count 5 blockages and 17 hospital stays in 30 years. I’m tired and still at this moment on a nearly liquid low fiber diet for 7 weeks. I’m single handed keeping the protein shake business afloat. My anxiety is thru the roof and insomnia is killing me. Not to mention what this is doing to my wife.
And yet, I still can’t make myself make the call to schedule the removal surgery. No one can make the decision for me. Advice appreciated but I think I just wanted to vent to some sympathetic souls.