I have been battling issues for about 9 months where whenever I have my menstrual cycle or ovulate, I have issues with my pouch ( frequency and not being able to go much, the consistency changes and pain). After 6 months of pouch endoscopies and rectal dilatations almost every 3 weeks and meds to calm, we discovered, through ultrasound and then MRI, that I have a peritoneal inclusion cyst on one of my ovaries ( darn near 10cm x 8cm).
I'm asking for advice from women who've had hysterectomies with pouches and wondering how they did?
The GYN surgeon is highly suggesting nothing or trying to drain it and hope it will relieve some of the issues. I have noticed that my periods have definitely changed also- very heavy and painful and exhausting. I often have pain ( uncomfortableness) with sex. Or He suggested a hysterectomy as a last resort, but has referred me back to my GI surgeon for his recommendation. The GI surgeon had originally said that sometimes he has seen over the years that the uterus and the pouch are so closely related in space that during menstruation and ovulation, the uterus causes issues in the space for the pouch. He sometimes have them remove the uterus to give space for the pouch to properly function.... because it has to.
Any input on experience with any of this is greatly appreciated!