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Hi all,

I’m 4 weeks post op from disconnecting my defective j pouch and getting an ileostomy. The surgery also involved 4 hours of adhesion lysing.

The past two days, I’m getting increasing pain on my left side,  quite sharp. Last night it felt like there was a tender swollen fluid or bump under my incision Near to this pain but today it’s gone although overall pain is still in that area. I know I did WAY too much the past couple of days, no lifting, but just being up and about the house, so probably bending at the waist etc more than before. Does this sound like pains from just “overdoing it” so close post op? I‘M worried maybe I tore something structural or an internal suture. I’ve been laying flat resting all day and it’s not improving from rest.  it’s not a blockage as the food tube is working fine 😃 It’s been 20 years since my original surgeries so I forgot about all these nuances of recovery, what is normal, what’s not. It’s the weekend so I’d have to go to the ER for medical evaluation, which I’m not doing with the Covid outbreak  in our region.

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Hi - to me it sounds like you did too much. I assume you don’t have a fever?  I would take some Tylenol and rest up over the weekend, and check in on Monday with your surgeon.  If the pain gets immense you may need the ER, but it could be filled with Covid.  What happened to your awesome pouch?  Seemed like you have 20 good years.  I hope you feel better.  How is the ileostomy working?

This is a question for your physician, but as long as the pain is moderating I think I'd let things ride and see what happens. It sounds like it could be related to your over doing it. I wouldn't be over concerned at this point, but if it starts getting worse or if it doesn't go away you need to see a doctor, regardless of your Covid concerns. Also, try calling your surgeon. If the answering service can't get him or her there should be someone on call who you can talk to.  Please take it easy.

@Doug K posted:

Hi - to me it sounds like you did too much. I assume you don’t have a fever?  I would take some Tylenol and rest up over the weekend, and check in on Monday with your surgeon.  If the pain gets immense you may need the ER, but it could be filled with Covid.  What happened to your awesome pouch?  Seemed like you have 20 good years.  I hope you feel better.  How is the ileostomy working?

Look at you giving advice! I told you that you would be giving advice soon! You are doing awesome!

Ok thanks all, that’s sort of what my gut tells me too (ha). I’ll see how it settles in the next day or two with rest. I guess I should know better and not push it, I’ve just been so happy to be able to do things after so long being incapacitated.

Doug, to answer your question, my pouch ended up twisting in on itself, plus had bowel wrapped around it and another segment pinned underneath, and frozen pelvis from adhesions, but no one could figure it out for  a very long time. I’ve had chronic bowel obstructions (over two dozen in two years) as a result. My pouch was great the first 18 years.  I had a few threads on here the last two years about my (awful) and long  ordeal, I’m so grateful for this group. I LOVE my ileostomy (David you were so right!), and I’m so surprised as I swore I’d never get another. Your perspective changes with extreme suffering, ostomies save lives.  I feel so much healthier already and can finally eat real food after nearly a year of liquids and TPN. It’s given me my life back, even this early post op I can feel the difference 😊

@duck11 posted:

Ok thanks all, that’s sort of what my gut tells me too (ha). I’ll see how it settles in the next day or two with rest. I guess I should know better and not push it, I’ve just been so happy to be able to do things after so long being incapacitated.

Doug, to answer your question, my pouch ended up twisting in on itself, plus had bowel wrapped around it and another segment pinned underneath, and frozen pelvis from adhesions, but no one could figure it out for  a very long time. I’ve had chronic bowel obstructions (over two dozen in two years) as a result. My pouch was great the first 18 years.  I had a few threads on here the last two years about my (awful) and long  ordeal, I’m so grateful for this group. I LOVE my ileostomy (David you were so right!), and I’m so surprised as I swore I’d never get another. Your perspective changes with extreme suffering, ostomies save lives.  I feel so much healthier already and can finally eat real food after nearly a year of liquids and TPN. It’s given me my life back, even this early post op I can feel the difference 😊

Yeah, do not overeat all of the time and do not do extensive exercise- try to keep it under an hour.

Drink water: Before, during, and after every meal.

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