Not posted for a while. Since i last posted i ended up having a bowel perforation and now have an ileostomy with a jpouch which is for the best as ive not had any bowel obstructions since. Horay for FAP and desmoid tumours 🙄
Ive been trying to search past posts but there is no search bar on the browser I'm using (chrome) so apologies for posting a regular topic!
im worried my jpouch has become lazy or prolapsed as im unable to pass mucous and feel like i have difficulty relaxing and have to put pressure on my anus for anything to come out (noticed this in the oast few days) . I have spoken with my internal pouch nurse about problems with leakage and irritation and I have been told I will need to irrigate as she thinks my pouch isnt emptying fully.
Ngl im freaking out a bit at the possibility my pouch is dud and I'll have to have more surgery (not ideal really as I have a Desmoid tumour near my jpouch and don't want to irritate it).
Can anyone give some helpful advice?