Hey guy's I have a few questions for anyone who's taken remicade infusions. I was scoped a few months ago and told my pouch was inflamed and had what looked to be draining fistula openings near the pouch suture line. Biopsies came back negative for crohn's. I then had a ct scan three weeks ago that showed that my jpouch and part of my right bowel was inflamed and a bit thickened. The thickening of the bowel again lead them to think that maybe my UC is actually crohn's. I've been on 40mg of prednisone for 2 weeks now, along with a 14 day run of cirpo & flagyl that'll be over on saturday. It has really turned things around quickly, going from the bathroom 12+ times a day down to 3. No pain at all from my pouch, and I can empty it when full with no problems.
Yesterday I went down for a scope of my stomach from my GI, and it went well. He said my stomach looked good, and then he went into the top part of my bowel and said it also didn't look bad, but had a couple spots with slight inflammation, which he said again could be mild crohn's. He's talking about throwing me on Remicade infusions in like 2 weeks, which I thought was a little soon to start such a drug, especially since I was still taking the prednisione. I kinda want to see what my body does when I taper off the steroid to see if my pouch stays happy, then I wouldn't even need the remicade. He looked like he got what I was saying, then said we'll see how I'm doing the end of july and see if remicade would be a good option. I was happy with that choice.
Just wondering what everyone here thinks of remicade, is it worth it to try? Does it trash your body at all? I just want some opinions from people who have used it, to get a better idea of what I might be dealing with down the road a bit. Thanks for the input!