I now have pneumonia diagnosed on a chest X ray and it’s already forced me to cancel my infusion on May 8 because my GI wants to see the symptoms cleared up and post 2 weeks before I get another infusion. So now the infusion is bumped to May 20 meaning the pneumonia symptoms must clear up by May 6.

So far no abatement of symptoms in almost 2 weeks. They put me on doxycycline and it has not helped. The pneumonia is likely viral in origin so I am waiting for this to clear up. Meanwhile I am worried that the Pouchitis will flare and there will be nothing I can do about it as there can be no biological drugs given to a patient with pneumonia.

BTW I had one of the 2 pneumonia vaccines in 2013 but they expire in 5 years and I didn’t get the renewal. So now I am stuck and waiting to get better which is like Waiting for Godot. 

Original Post

Having pneumonia between Remicade infusions is not what you want. I am hoping that as time progresses from my last infusion, which was March 26, the immune system will strengthen and enable me to fight it off. I have been dealing with it for 2 weeks now. The last two days have been better. I really need to have it clear up by May 6 so my next Remicade infusion on May 20 can be given. I have had a tendency to flare slightly towards the end of the cycle between infusions which is why I went from 8 to 6 weeks. So any further delays on the Remicade could be problematic. I also have a scope scheduled on May 22 and don’t want to put that off either.

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