I am so SO sorry this is so long. I am really kinda desperate and have trusted so many of you for your input over the years. From the blessed Jan to so so many of you.
I will give you as concise a facts as I can. Everyone's story here is probably just as complicated in it's own way.
We live in Utah (not Mormon) and Utah is the "AAA Baseball league" of colon surgeons (not the best selection). Why do I say that? My wife had a colectomy with J-Pouch performed in 2005 by a surgeon who was actively killing patients with his incompetence during the same time he came within a few days of killing my wife.
Okay, SO I pull her out of that hospital in 2005 and she slowly recovers and has her takedown in 2006-07 but the scars mentally run so deep.
She has done okay since then (J Pouch okay = random blockages, pain, scar tissue pain etc) but nothing major. ...Until this week.
Crohns flared on her past couple months so we put her on Remicade and after the 2nd infusion, she started to feel pain higher in her abdomen. She went downhill last weekend and we brought her to the ER. CT came back "Twisted small bowel". Surgeons came in a literally said, "Okay, so we need to go full "open surgery" and straighten these loops BUT also cut all adhesions and realigned the small bowels with our hands so that there is better flow path etc etc. NO talk of laproscope...nothing like that. Just atomic weapons of surgical words.
Now, 30 years ago, we would have nodded our head and said fine. After 60-70 hospital visits past 30 years and all that we have learned, our first response was HELL NO!! NOT without a chance for these loops to clear.
Here's where we are at. We lost insurance this year so we are on the gov plan. I was it's biggest enemy until you need it.....thennnnn it's ummmm not so bad. BUT it 100% does not cover Mayo....Cleveland. Just this one hospital system. We have been trying to put these surgeons off since she was admitted Tuesday afternoon but today they said, "Look we need to see if the loops are losing blood flow. Tomorrow you are either getting surgery or you are going home!" See, it's just hot fun up here in bush-leagues of doctors.
My wife is literally having panic attacks. EVEN if this goes well, this sounds like a nightmare recovery waiting to happen. I am a nervous wreck and we just are so lost on what to do.
Last question. These surgeons are "trauma surgeons" and "general surgeons" NOT Colorectal surgeons. I should be demanding a Colorectal surgeon should I not??