phantom pains

I have had a K-pouch since 1976. I had the same phantom feelings ( not really pains ) when I first got out of the big house.
Since then, I have not had the feelings where my rectum used to reside. Sometimes I feel I need to intubate - but when I go to the bathroom - very little comes out. Mysterious little buggers.

I've been an ostomate for 41 years (30 ileo, 11 BCIR), still get phantom "pains", same illusion that amputees have. Nothing I know of can be done.

Ray

Rosie,
I get them more after certain activities like bike riding, running or other exercises that put some sort of pressure on the zone...sex or my period (when I still had one) made it much worse but it wears off a bit as time goes by...or maybe I just got used to it...It feels more like a heaviness down there or a knife pain... I still dream of having normal bowel movements and then wake up with some cramping or pain down there...
mostly after 33+yrs I ignore it but if it gets bad enough to interfere with your life you can take an anti-inflamatory or an antispasmodic.
Sharon

I hate that crap. I regret removing my rectum and anus all the time. I actually one day hope with stem cells I can recreate some parts. I really have no desire to keep this pouch and don't want a bag so will be awesome to have it all reconstructed down there.

I have night terrors I swear where I am trying to fart. I can feel my body trying to pass gas at night. I hate this barbie butt big time, especially with gas.

I get the 'oh crap, I have to run to the bathroom and poop now' feeling a lot if I drink coffee fast or eat chocolate or just have a super full pouch.

I am going July 8th to start killing nerves with blocks so hopefully that will help eventually with that sensation. I don't think it is phantom, to me it is real since when I go to the bathroom it goes away.