She has been on the list for over a year, with a couple of dry runs. This is a lifesaver, literally. She is doing well at Stanford Thanks for listening...... Sally
You friends are all so wonderful. Please keep Kelly in your prayers. She took a turn for the worse....came down with a bug they are testing for pneumonia and rejection of lungs.. if you are interested, her blog is Kelly'stransplant@pressbook.com. if that is not right, I will correct it. It is amazing what they can do, but it is terrifying at the moment. This happened overnight and they have sedated her to nearly a coma. Oh, Kathy.....yes, she is Kelly. Merriest of Christmases and Happiest of Hannukahs. I love you guys. Sally
Sally, She is in my prayers...I just hope that they get that bug and knock it out...she needs a break for Christmas...hang in there...We are all with you. Sharon
Sally, Can we have an update? How is she doing? How are the lungs??? The infection??? Are the anitboitics helping her any? What are the doctors saying? We are still praying for a successful outcome... Sharon
I checked her blog, and it is touch and go still and she is on ECMO, which is similar to cardiopulmonary bypass, but for longer treatment. She is making gradual improvement, but not breathing on her own or even using her new lungs yet. So, we need to keep sending positive vibes her way... Wouldn't it be nice for her to turn a corner before Christmas?
Please keep Kelly in your prayers. She has been on ECMO for a couple of weeks, her lungs are not working, there is air around her heart, and they have her heavily sedated on propofol. We are having another family/doctor conference call at 2:30 to make some decisions as to her direction. God Bless Kelly and get her new lungs going!! Happy New Year to my JPouch friends. Love you guys, Sally
I apologize for not keeping you up to date on Kelly's transplant. I was in the hospital for six days and have been recovering (not a jpouch issue). Sally
Dear Sally, Thanks for checking in. Jan gave us the link to her Blog so some of us have been checking it and continue to pray for Kelly, all the medical personnel and your family.
I hope you are fully recovered from your hospital stay too. God Bless you all.
TE Marie, thank you so muh. We are reaching out for answers and ideas from other cystic fibross transplant survivors, etc. Today, as time is of the Essence.
Sally, all of my prayers are with both you and your daughter...keep your own strenght and energy up, you need to be strong for both of you now. Hugs Sharon ps...are they or can they do 'inhiliations' (lung steaming?) on her to help clear out her lungs?
Sally, I just read the blog and I am in tears. I am so, very sorry. Please know that I had just found the blog and in reading through your daughter and entire family have inspired me more than words can express. My thoughts and prayers are with you all at this very difficult time.
Oh Sally, I'm so, so sorry you lost your baby. I hope all your wonderful memories of her start replacing the heartbreak as soon as possible. My heart aches for you.
I'm crying too. I felt I knew Kelly from reading her blog and from all the posts others contributed to update it.
Her smile is so warm I can tell what a fighter she is. I agree that she is not finished and admire her family and friends for keeping her spirit alive.
I had a very ill child once and he is healthy now. We had to watch him like a hawk and it was the worse time in my life. Our children are precious and we are lucky and better for having them in our lives. I can't pretend to know how you are taking all of this, other than it is the worse hurt I can imagine one to ever have.
I requested prayers for her on my facebook page, without mentioning her name, and people were praying for her everywhere.
Take it as easy and be as kind to yourself as you can. You did everything you could and she knew that.
I sent you a PM, but wanted to also say here how sorry I am for your loss. Kelly was obviously a strong and vibrant woman and will be greatly missed. Prayers and tears from Boston for all of you.
When you block a person, they can no longer invite you to a private message or post to your profile wall. Replies and comments they make will be collapsed/hidden by default. Finally, you'll never receive email notifications about content they create or likes they designate for your content.
Note: if you proceed, you will no longer be following .