Summary: SSKI (Potassium Iodide) has kept my pouchitis in remission for 4 months and counting.

Details: I've had my pouch for 3 years. For the past two years, I had pouchitis pretty consistently. I went through all antibiotic options, with some working for a bit but all failing after a while. Earlier this year I started having flair ups of another autoimmune disease: erythema nodosum, causing very swollen, painful nodules on my feet and ankles. My dermatologist prescribed SSKI drops (Potassium Iodide) to try as a treatment. After starting them, the erythema nodosum stopped occurring and my pouchitis got better. I've experimented a few times, stopping for a couple days, and the symptoms have slowly crept back. My doctor recommended taking 15 drops, 3 times a day to start and then go up from there. However, I do not take more than 3 drops a day, or else I get negative side effects. But this dose works just fine for me. The drops are prescription only, as far as I know. I am not sure if other iodine or iodide supplements would have the same effect as they are usually a much lower dose.

Just wanted to share in hope that this can help anyone else. I'm very appreciative of all I've learned from others in the forum over the past few years.
Original Post
just curious dr. said 15 drops there times a day?that seems excessive ?how does one take the drops and how did you get from 15drops three times a day to 3 drops in total?never herd of this treatment before..can dr. explain reason its working for your pouchitis?
I would love to find an alternate to antiobiotics, but I thought you are only supposed to take KI if you have thyroid issues or have radioactive iodine in your system. Would defintiely be interested to hear others perspectives on this.
Rebe- The doctor was very surprised that it was working for the pouchitis and especially at that low dose. I think the higher dose would have been for short term use, but he told me it's okay to continue long term at the low dose I'm taking. I put a few drops in my water (distilled water).

CLZ- I too would be interested to hear any other perspectives. I was not able to find anything in my research that explains why this works. No other mention in this forum either.

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