I've had my j-pouch for 15 years with never a problem so I had no idea what was going on except I knew I couldn't pass anything. I came to the ER Monday night in such pain, I thought I was dying. I'm still in the hospital with abdominal pain around and across my belly button area. Not as severe, but still painful. CT Scan showed some kind of blockage - sounding like the area where I had the ostomy before reversal. Finally, things passed. Probably because of the CT liquids they think may have pushed things thru. Stayed on liquids until last night. Started me back on some solids which is producing only liquidy diarrhea. Finally going to do a stool study to see if there is an infection. May want to do another CT Scan (I hate the idea of all the radiation.). Also talk now of scoping the pouch - the only thing I remember Dr. Bauer ever saying was to let nobody touch that pouch. Wondering what some other experiences are with obstructions? Pouchitis? What you've had done? How to advocate for safe testing. Scopes? The pain is bearsble now but I don't want to have this happen again if I leave not knowing what's going on and how to deal with it. Any suggestions would be great.
Thanks. Lisa Henserson
UC / J-pouch @ 15 years ago