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The Nsaids finally got the best of me.

I have been on  ever increasing doses for over 15 yrs and have topped off with Double doses of Naproxene 400mg 2/day...2 nights ago I woke up with horrible stomach pain, nausea etc...thought that it was a blockage but it was too high up.

I have cut out the nsaids ever since...it still hurts/burns a bit but am taking the omaprazole to help (was supposed to take it before the nsaids but never did).

Now the problem is what do I use for pain (other than a block of wood between my teeth)...tried the tramadol with tylenol.

Not sure how that is going to effect my blockages...this is becoming a maze of problems...one fix is another complication.

I'm seeing my ethiopath today so maybe if he can help with the pain I will try to stay off of the pain meds too for a few days.

Sharon

 

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i've been off of nsaids for decades due to them causing upper gi ulcers.  have you tried celebrex, which is a cox-2 inhibitor that is suppose to eliminate the ulcers and stomach pains. 

that said, my experience wasn't so good.  this last summer i thought i'd again try.   within five days i had terrible stomach pains and my then J pouch started bleeding.  later on i realized celebrex is a sulfa based drug, which is another reason not to be on them as sulfa based triggers pancreatitis for me.  

i take 3 g. tylenol daily and although i have pain, i find that both exercising at least an hour a day and meditation helps me to ignore it better than when i skip those two events.  

good luck, janet

Thanks Janet, 

I am allergic to sulfa and anything containing sulfa...not a good idea for me.

I am taking the tramado with tyelnol for now. Saw my ethiopath who managed to get the right side partially back in (1st rib by neck still out and very painful).

He is getting to know my body well enough to become more and more effective but my body doesn't hold the adjustments and goes out rather quickly.

He did some organ & deep tissue massage. Worked for 1/2hr on me and said that the duodenum was tight and it was very painful...the hot spots that he worked on feel so much better today...it is amazing! (that could be the tramado too)...I slept through the night for the first time in weeks so that is a plus.

I think that you are right...Back to tylenol (isn't it bad for the liver?).

More yoga too...because I still cannot walk.

Onward and upward...

Sharon

The maximum daily dose is 3000mg (used to be 4000mg). So, you need to take a lot for it to be damaging. The main danger is when you take multiple products that contain it and OD unwittingly. 

I have been doing well with tramadol and acetominophen. Getting hydrocodone in the US as a routine medication was just getting too much of a hassle. My rheumatologist suspects that tramadol will eventually be under the same restrictions.

Jan

Jan,

This is stupid question time for me since biologics scare the ...off out me..

I take public transportation daily. We have a huge immigrant/refugee population at the moment that has brought back tuberculosis and many other contagous diseases that were thought to be irradicated from French soil...How at risk will I be?

One of hubby's friends contracted tuberculosis 2yrs ago from taking public transport and it took him months to fight it off...and he was not immuno-compromised.

Will I be able to travel to certain countries? (not that I can travel anywhere at the moment!)

Thanks

Sharon

I travel, but not to third world countries. There is a big world of travel out there where you don't have to put yourself at risk. I can tell you that I would not be traveling if I could not walk.

I wash my hands a lot. Carry hand sanitizer when I am in a big city or abroad. They test you for TB before starting biologics (so you don't reactivate any latent disease that you did not know you had), and they restest every few years. I have monitoring blood tests every 3 months. I have had one scary systemic infection in 10 years, and the cause was never found. I get a flu shot annually, have had the latest pneumonia and hepatitis B vaccines. So far, communicable diseases is the least of my worries.

My GI is considering Entyvio or Remicade infusions at this point.

Jan

Thanks for the heads up...I have no choice of where I work or travel...kind of goes with the job and I am lucky to still have one. 

I usually do the flu shots and can always get the Hep B vaccine...Any others that would be reccomended before heading towards biologics?

Honestly it is the subways that scare me the most at rush hour...tight, up close and personal contact, breathing face to face and holding onto slimy rails and bars that were touched by 5000 people before you got there (I try to hold using my sleeves).

I am coming down with the flu as we speak so I know that I am vulnerable (and forgot to take my shot) I just don't want to jump from the frypan into the fire.

But this pain is mind-blowing without the anti-inflamatories I am barely able to walk any more.

Appt with my Rhumy next month...I guess we know where this is headed.

Sharon

 

I never forget my flu shot now. It os on the calendar as soon as it is a ailable. Plus, everyone in the household gets one too (it is not 100% effective, so you should encourage anyone you spend time with to get one). If you have not done so yet, get the shingles vaccines. Once you are on biologics you cannot have live vaccines.

Jan

sharon

perhaps you have mentioned a problem with this or you have previously tried it, but might you get a cortisone shot for the tendonitis? 

google the side effects of tylenol for info on the kidney and/or liver problem.  given you don't drink alcohol you should have a higher tolerance.  industry standard used to be 4 g/day; not sure when they came down to 3g.  

food can also make a difference.  i don't eat refined sugar, so long as i can help it.    eating out can be a problem and i'll feel it if they use sugar.  i think the initiation sugars also increase inflammation.   

we need a new pain reliever!!!  sign me up  janet

I'm with you Janet...someone out there...please invent a new pain reliever that is not addictive nor has any nasty side effects (I have learned to be precise with my wishes or my fairy God-mother grants them to me 'funky'...I suspect that she drinks! )

I never thought about shingles...wonder if it is availible here...will find out...(any side effects from that one?)

The flu vaccine is sitting in my fridge...so is hubby's...we were lazy and forgot to do it a X-mas...too late?

Sharon

No, not too late for a flu vaccine, but you say you are coming down with the flu now. It won't help you if you already contracted the virus. Are you saying you have flu vaccine in your own fridge? In the US, they don't send home vaccines for self administration, so I am confused. If this is the FluMist (nasal mist), you definitely can't take it once you are a biologic. FluMist is a live vaccine. 

I would imagine that the shingles vaccine is available in Europe.

Jan

for specific pain areas, such as a shoulder or lumbar, you can try lidocaine patches or gel.  also nsaids come in similar topical applications, although there is some systemic absorption that you might wish to avoid.  neither seems to cut the pain enough for me to bother with the $$ or time.  

get the shingles vac.  it's a one time event.

No, Jan,

I have the vaccine shot at home in my fridge. The French system is way different than the U.S system...those who qualify get a letter from the social security system (our health care system) with a 'cupon' for the vaccine. You go to your generalist to sign the cupon, take the signed cupon to your pharmacist and he gives you the vaccine. You then take the vaccine back to your generalist for him to administer it to you. A lot of travel for very little result because you must pay your G.P. 2 visits to get 1 vaccine. The pharmacists are fighting for the right to administer them themselves. It is an expensive and wasteful system...The vaccine on its own costs under 6€...The doctor visit 28€

So every year I just buy mine and hubby's and give us the shots...except that I forgot to this year. You have to take them out 1/2hr beforehand and I just don't remember.

I have another blockage or the nsaids have killed my guts too...Feels like the flu, I ache all over and am running like water but no throwing up just gut upset...no fever...if it doesn't get worse then I will take the vaccine.

JLH,

I use the anti-inflamatory cream morning and night on the ankel and have the lombard patches. 

The Rhumy refuses to give me the cortison shots because he says that they destroy the joints and cartilage...he is right so I suffer in silence!

Sharon

The cortisone shots are fine for most large joints, but not good for the Achilles tendon (blood supply nearly absent, so it is dangerous). I've had them in my wrists, elbows, and knees with fair results. No damage. You just cannot repeat them often, so you need maintenance care. 

What a silly system for vaccines! We either line up in the hospital lobby during "flu clinic" time at my provider, or go to the "drive through" clinic in the parking lot. They must not really want people vaccinated in France, or it would be more streamlined. There's no way you need a doctor to administer it.

Just take them out of the fridge, have dinner, then inject. It does not have to be exactly 1/2 hour. The same is true for biologics. Sometimes I let it sit for hours before injecting. Unless your house is super hot, it is fine.

Jan

The French system is rather corrupt...you get all of your meds in boxes...the boxes can be for 12 or 13 or 36  pills...there is no logic to the quantity...when the script calls for 2xs/day for 7 days...that means you either get 2 boxes of 12 or 1 of 36 but you can never get exactly 14...so every one has these boxes of 3 pills of 42 or some absurd number that is way too much or not enough etc...the prices are somewhat subsidised so they are really cheap for somethings and very expensive for others and now that some that are no longer reimbursed by the health care system are just plain taken off of the market like the historically used Diantalvic for pain or Myolastaine which was the go-to muscle relaxant for things like sciatica...now you either get over the top narcotics or tylenol...

Sharon

fascinating about the flu vac and little pills in little boxes.  american drug system is so driven by the big pharma that if one hasn't invested in it then they can't afford the meds.  that topic gets me ranting and raving.....

hadn't thought about the achilles tendon being a smaller area, and yes i can understand that a cortisone shot isn't appropriate.  pity as they can break the cycle of pain and often get one over the worst of it.  i'm at my wits end for suggestions, other than meditation and perhaps acupuncture.  both are very effective for me, but need to be done on a regular basis or the effect drops off.  staying active--be it yoga or exercise or biking--makes a big difference for me.  peace, janet

When things are very bad I go on a fast prednisone taper, lasting about two weeks total. Saved my bacon a number of times. I also still have my CAM walker (boot) for very bad Achilles tendon flares. My son calls me Frankenstein when I have to wear it. For lesser flares I use those elastic ankle supports. Anyway, whatever it takes to keep moving, as resting too much makes it worse.

Jan

I keep moving whether I like it or not...gave in and used the cane yesterday. It helped on flat ground but there are so many stairs in the subway + bags etc and I was moving like an arthritic turtle at rush hour.

It had the advantage of getting me a seat every time.

I am using the flexible strap with velcro with Nsaid cream underneath. Icing like crazy. 

Yes our health care system is expensive and broken and wasteful but it is better than none at all and it has saved me a fortune over the years. I also have 2 supplementary health plans.

When hubby came home from the hospital last year I went to fill his scripts. I came home with nearly 35 boxes of 2 kinds pain meds each. The table was piled high. (I asked him to fill 1/2 the script!)

He didn't take any in the end.

 

My last chance is that they pay for 'cures'...sort of like a spa (just not necessarily pretty or fancy) where you have 21 days of intensive treatments...Water therapy, heat, massage, physio etc...it is covered by our plan and most people come back 50-80% better for a while...They specialize from site to site on asthma, muscle, diseases, cancer recovery...this one does Ehler's Danlos and ligaments/breaks/accidents. But you need to stay for 21 days or it is not covered. Will have to see about June.

Sharon

 

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