Not that it will help whinning or complaining but I have started having severe pain in both hands since about 2 months ago...I broke both radial heads 2yrs ago and the breaks never healed. The orthopedic surgeon chose to watch and wait explaining that with my condition I would probably lose feeling and function in my hands if she operated...the end result is that they are still not consolidated but the bones have shifted, moved and rub against each other when I use my arms breaking down bone and displacing the radius...moving the bones has moved the axe to the writs and now both hands are in pain...

Darn, just when you get one thing working something else pops up...

Sharon

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Sorry to hear that Sharon, one of my hands is messed up from when I was on Remicade. I managed to get a sever infection from a little cut on the palm of my hand (I am missing the pad at the base of my thumb) things always feel weird and sometimes the whole hand operates oddly and aches often. Our hands are important so I can sympathize with you.

I hope something can be done. Good luck.

Thanks Pouchlogic,

There is not much that they can do now, operating is out of the question due to a healing disease and high risk of infection and it is way too late and useless to cast it. The result is that it is considered non-consolidation and the bone is just degenerating...in the MRI it looks like the bone is melting like a candle...unevenly...so it has twisted to one side...

Just angry that when I begged them to do something they said that it was not necessary....

Darn

Oh man so sorry to hear about your hands. Is the pain constant? I’ve been putting myoflex cream on my foot and it helps the pain and I found these patches on line that actually work great. I’ll attach a picture. Several years ago my left fingers went stiff like sticks. They just would not bend. I had weeks and weeks of therapy and wore a special contraption that gradually pulled the fingers closed. Well the last couple of weeks when I wake up the fingers on both hands seem frozen in place, the left worse than the right. I spend several minutes forcing the fingers one by one into a bending position. I’m so afraid it’s going to happen again in both hands. Fortunately it only hurts when I bend them against their will. Have you gotten a second opinion to see if there may be some way to help your hands? I’m having surgery tomorrow by the fifth colorectal surgeon I went to for help with the constant pain in my bottom. The other four said there was nothing they could do. Never give up searching for help.

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Thanks, little bird,

I will make an appointment with my physiotherapist to see what he has to say about it and what he can suggest as far as treatment goes. I already take 1 Robaxin 2xs/day for back pain (and 2x2 this week) so I am topped up on pain and antiinflammatory meds...I try hard not to go past that...which means that I would hate to see what the pain feels like without it!

Winter is coming, it is raining a lot and this feels suspiciously like arthritis, reacting to the weather. 

But thanks for the hint about the patches...I will ask my doctor.

Sharon

Good morning Sharon, I’m on the way to the hospital and it dawned on me I didn’t tell you about stem cell therapy. I have had stem cell from amniotic fluid injected into my hand where it had arthritis and was swollen and even had a knot. After one injection the swelling and pain was gone. The same thing happened for my knee. I also get them in my back and it makes a big difference. I would so recommend getting stem cell injections in your hands. The place on my hand were it was injected has never hurt again.

Have great day.

Robin

Thanks Robin, 

I have vaguely heard about it but never actually spoken to anyone who had had it done. 

I have been very interested in it too...no side effects? No other growths? What were the problems with your knee and where did you get it done and by whom????????

How much does it cost?

Since I cannot have surgery on anything like hands or knees (healing disease) I have to find alternate treatments and that sounds perfect.

Thanks so much

Sharon

Morning Sharon,

The stem cell I get is from amniotic fluid so it is sterile and does not have the risk that stem cell from cord blood has. The doctor is Dr. Nash with Progressive Pain and Rehabilitation. Ph.# 346-220-8063/ www.DrNashCares.com/ DrNash@DoctorNashCares.com3275 College Park Drive, The Woodlands, Tx. 77384

My insurance covers the cost of the stem cell injections so I’m not sure what they cost. I do know it doesn’t take much to get results. My thumb joint was swollen and warm with a hard knot in it. It was stiff and hard to move. After only one injection the knot went away as well as the swelling and pain.In just a couple of days I’m using my thumb again with no problem and it’s now been a year with no pain.

My knee was always popping and cracking when I was walking and always felt like it needed to pop. I had torn the meniscus and during surgery the doctor said I had plika over my knee cap that should have dissolved as a child so he took it upon himself to cut it off. I evidently was using the plika because after he took it off my knee cap started popping. He fixed the torn meniscus and should have stopped there. Why mess with what’s not broken? Anyway the stem cell has greatly improved the discomfort around my knee cap and almost eliminated the popping.

I get injections in my right foot as well because I have nerve damage in it. It helps very much and especially at the joints.

Should you need to come here for it you are welcome to stay with me. I hope you are able to get this done so you can get some relief.

Robin

Thanks Robin,

I will look into it here in France first because I am sure that none of my insurance policies will cover any of it.

If I cannot find anything here then I will do all of the exams here and fly out.

Thank you so much for the offer. 

Sharon

The doctor I use is able to get the injections covered somehow on insurance. It has to be coded correctly to get it covered. You may give his office a chance to see if they can get it through your insurance. Also I think it also has a lot to do with the kind of doctor wanting to use it. He also goes through surgery centers that agree to take whatever your insurance will cover and they just write off whatever isn’t covered so your not stuck with paying it. 

I was in Belgium for work last week and one of my colleagues (an ex-gymnast who broke her spine and one leg in half)...used hyaluronic acid injections into her spine and leg when they would not heal...she said to look it up...here in Europe it may just be easier to get done than stem cell therapy...

I will look into it...

I just came back from Belgium, a marathon return trip with cancelled trains, running for replacement trains on different platforms, going the wrong way to get to the right train in time...in all 4 different trains (with carry-ons weighing a ton and work bags, bags of chocolate and purses...plus my best friend who did a lot of shlepping and carrying and climbing with luggage)...we managed to get back to Paris in time to be dissed by Uber and grab a cab that went exactly 1/2 mile in traffic only to kick us out due to a huge traffic snarl because of a demonstration march...meaning we then walked against the flow of demonstrators with all of the luggage, across the city until we finally climbed up and down the stairs into an overcrowded subway...And made it home.

My pouch, Goodness bless it, behaved beautifully through the whole trip, but my arms, back, hands etc...suffered.

But we made it home in one piece...I am thrilled that I booked the day off today because I truly need a rest.

We do what we have to do and pay the price later...but sometimes it is just worth the effort...I may not be able to do this trip again in a few years but for now, I am enjoying the freedom that my K pouch offers me and the joy of teaching abroad.

Next year I will be teaching in the Czech Republic, Belgium and hopefully anyplace else that they invite me...as long as my arms and pouch let me go, I will go.

Sharon

Sharon,

Wow I’m exhausted just hearing about that. I’d be in bed for days. You are amazing. Your travels sound so amazing. 

Im doing well since the surgery to remove the mass of scar tissue from between my tailbone and bladder. The mass was as big as my bladder. It has totally removed the feeling of pressure and that horrible constant pain. There is still pain higher up but Dr.Jacobson said I can expect pain from the surgery for three more months. And if it still hurts he can go back in and remove more scar tissue higher up. I’m still in constant pain but in the morning the pain level is so low and instead of going back to bed at 2:00 in the afternoon I’m up til 5:30 or 6:00. The pain use to stay at a ten and now at the worse it’s never more than an eight and that’s not until evening. I’m so grateful to Dr.Schiller who did my BCIR for finding Dr.Jacobson who was willing to help me. I had to travel to another city but man was it worth it. To help my husband grasp the difference in the pain level I told him it’s like having your tongue slowly sawed off to now having a large needle being pulled through or instead of having your foot chopped off it’s just stuck in a vice. While the lesser examples are less painful they are still very unpleasant but I’m grateful for the improvement. 
Im so glad you were able to do what you love. I hope your next adventure is amazing.

Robin

Sounds good Robin, 

It seems like things are starting to go in the right direction...that is good. Improvement gives us hope and that is all that we need to go on.

I no longer rate my pain level...what is the point...it is only giving it importance. I no longer try to think about it...Hubby says that I am constantly turning and twisting in bed...he knows that it is the pain but since nothing can be done, we do not talk about it.

I take a Robaxin generic that I can get in Canada at Costco...it is reasonably cheap, mostly anti-inflammatory with a bit of muscle relaxant...I allow myself 2x/day...1 in the morning and 1 at night...That is my maintenance level...less and I can barely move...I double up in case of severe pain or if I have done something stupid. Like the other day...but that is only once in a while.

While I was in Bruges we walked 12000-15000 steps/day on coblestones plus running around the university campus and up and down stairs...sticking to a semi-strict diet helps me a lot...

Lots of good quality protein, no white flour, a bit of soy and some fruits...I also love soup so I eat a lot of it...tomato or pumpkin lately or just veggie...makes my pouch happy too.

So, take care and I hope that the pain diminishes gradually and that you can go back to being you.

 

 

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