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I have a love/hate relationship with my pouch. Today I hate it! I usually leak, but today it's been awful, I was making waffles for my daughter and started leaking, gas started churning, I thought my pouch was going to explode. Tried to wait until she was done eating, rushed to the bathroom - nothing came out, sat there for 10 min.
I'd promised her we would go ride the carousel at the mall today, once we were on the carousel I started leaking again - a lot Frowner I was just standing there feeling stool coming out. Tried to hurry back home, but you can only go so fast with a 2 year old who wants to stop and look at everything, ha. Had a full blown accident as soon as I stepped onto my front porch Frowner
I need a solution to this constant leaking Frowner
Katie
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I also experience this, some days worse than others. It really sucks!! I haven't found a great solution. I also take Imodium every day, have been on flagyl and Cipro for pouchitis...no matter what I'm taking I don't remember a day without at least one episode of leakage. Lately, it's been mire frequently, and my bottom burns! I wish I had a solution I could share with you...but I totally get your frustration. I also have a young daughter, and it's really tough to have to rush her around to quick get to the bathroom.
I do notice, in general, I feel better when taking VSL 3, but it doesn't stop the leakage
One thing that did help me with leakage, though I have now had my pouch removed, was tincture of opium. That with a cotton ball placed not deep inside but at the exit point and I could at least function most of the time. Ultimately I just couldnt live my life the way I wanted and had an end ileo. My leakage was made even more unpleasant because I had butt burn so even a small amount was pretty miserable and couldnt be ignored.
Often leaks and emptying problems are 2 sides of the same coin (you can't empty, so the pouch stays full, so the pressure and gravity cause leaks).
So, a possible solution is to empty your pouch with a catheter/irrigation tube.
See my post in Fosty's thread "Irrigation tube ... Anyone ?" for more details about how to do it.
Good luck !

I've been using irrigation with a catheter since my surgery in 1988 and it's served me well. I use a medena cathether with a 60cc catheter tipped syringe and it takes 3-5 times to empty completely. If I don't do this the gas build up and leakage is a big problem. The only issue is going out to dinner or on a plane you need water and to carry your "kit" with. you but I've managed all these years. I also take. probiotics and a drink Yakult once a day which seems to help as well but other than really fiberous foods which create issues with the catheter emptying properly I eat almost anything.

Indy,

You use the K pouch system for irrigation...tap water is just fine and when out an about or travelling I take a child-sized water bottle with a sippy-tip on it to fill or rince things out or fill my syringe...makes public toilets and planes easier to handle.

If you find an irrigation bulb (sort of rubber of silicon) they you may be able to squeeze the water into the tube directly (I do it in emergency situations with the water bottle but then I throw the bottle away afterwards). 

Sharon

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