I had a pouchoscope Tuesday at Mayo's. I'm going back this Wednesday to meet with my GI and the surgeon he's recommended. I told him before the scope that I was ready to get rid of it. He said that might happen...... I don't remember our exact words. I did have the sedation but I heard him talking to someone before a bunch of biopsies, like "there" over and over again and saw them doing so on the screen. I saw cuffitis on the screen, inquired and he said yes. Before the procedure he apologized because they couldn't schedule everything at the same time. That was nice. It's the first time that's happened to me at Mayo and I go to 3 different departments. We need to drive the 3.5 hours back this week. I ride as can't sit very well and lower the seat back. No condition to drive a car.
He told me to keep up the enemas....He dilated a different place than the efferent limb, which was dilated in Feb. It was all surreal. I passed a stool full of dried and regular blood. I don't remember doing that after scopes before. FYI, I have to give myself enemas in some form or the other at least 5 times a day and have been on a soft food diet for months.
Today I woke up in pain from above my waist down through my abdomen. My back side of the same area was painful too. This was a different kind of pain. I didn't know there could be any more kinds of pain. When it starts hurting above my belly button I am in trouble. I doubt it's my kidneys or something other than my j-pouch. It is probably a partial blockage. The enemas quit bringing out anything but clear water back. I have the enema process down pat so something is wrong. Good thing I have pain pills and antispasmodics. They aren't working too well today. I only take the dicyclomine when I have to. It blurs my vision.
I'm on a soft food diet and have been on it for months. The longer I have to wait for the consultations the worst my anxiety becomes.
What is the worst thing that could happen? (besides death).
I will need to go to a permanent ostomy and I'll loose this awful acting pouch. It wouldn't be then end of the world.......