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It's been 7 years since takedown and have nightly bowel incontinence--generally just once.  Every night   During the day, control is fine.  But at night I don't wake up until it is too late.  It can be more often if I eat much after 630 pm and it doesn't seem to change with diet.  I take just loperamide.  What are others experiences? Anyone have suggestions?   Very frustrating……...

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Hi Captaink. I've had my  jpouch for 16 years and started having problems with nighttime incontinence after a dialation during a scope. I take loperamide before bed and in the middle of the night if I have problems. I do find its more problematic if I eat something that gives me gas, like broccoli or a green salad. And also if I'm really tired and very sound asleep.  I do wear a panty liner every night. Well everyday too.      A friend told me about a product called a Butterfly. It's a "pad" that fits between your "cheeks" and attaches with adhesive like a panty liner. She said she bought them at Walmart. I haven't tried them yet but plan too. 

Well, it sounds like you have sphincter weakness then. They naturally relax some during sleep. For people with a colon and rectum, it allows for gas to escape during sleep. Since our stool is more loose, that is a less than helpful reflex. Imodium is said to improve sphincter tone, so you could increase your evening dose, or even take your entire daily dose in the evening, instead of spread throughout the day. There is a long half life, so there probably would be enough on board during the daytime.

You can have anal manometry tests to diagnose it.

Jan

captaink posted:

It's been 7 years since takedown and have nightly bowel incontinence--generally just once.  Every night   During the day, control is fine.  But at night I don't wake up until it is too late.  It can be more often if I eat much after 630 pm and it doesn't seem to change with diet.  I take just loperamide.  What are others experiences? Anyone have suggestions?   Very frustrating……...

Captaink I couldn't find your reply to me, but I understand now why you wouldn't want to use my suggestion   Lol ��

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