Night time nonsense...pouch or bladder?

I like proteins...you can try just eating a chicken breast and having a protein shake or something like (if you can eat it) Greek yogurt.

I like homemade, blended vegetable soups too...I make them with bones sometimes for the extra vitamins and flavor...that with a piece of chicken in it or a fish soup (my favorite food in the world)...it is just every leftover piece of fish that the fishmonger has (bones, heads) that are cooked together and strained...then I add a paprika/tomato base and simmer with spices...it is rich, hearty (you can add chunks of fish and fresh herbs)...it makes for a satisfying, pouch-friendly, bladder-friendly meal that goes in-and-out before bedtime...I sleep like a baby after that!

Make whatever makes you, your mouth and tummy happy but reset your stomach-clock.

It takes me a couple of nights but then I am fine.

Sharon

If I were you, I would seek help from a urologist first. A urologist specializes in bladder function/issues. I think that is the best option. If all goes well with that, I would seek a gastro. Those two options seem best.

I must admit that unless I suspect something serious (or I have real proof), I tend to not run to the nearest doctor. Not that I cannot afford to...I live in a country with social health insurance and I have 100% coverage.

That said, as the years go by, appointments are harder to get and it takes longer to find a specialist.

Years of not having a doctor or surgeon who knew what a K pouch was or what my plumbing looked like made me very self-reliant so I tend to go for all of the 'easy' or 'simple' solutions first before wasting my time sitting in a waiting room.

Doesn't meant that you shouldn't consult...Far from it. But if you have 0 symptoms in the daytime then it is probably not a UTI or Pouchitis but more sleep-cycle-related or the time that you eat or drink and what goes in...but that is my opinion and not fact...

Just saying

Sharon

@skn69 posted:

I must admit that unless I suspect something serious (or I have real proof), I tend to not run to the nearest doctor. Not that I cannot afford to...I live in a country with social health insurance and I have 100% coverage.

That said, as the years go by, appointments are harder to get and it takes longer to find a specialist.

Years of not having a doctor or surgeon who knew what a K pouch was or what my plumbing looked like made me very self-reliant so I tend to go for all of the 'easy' or 'simple' solutions first before wasting my time sitting in a waiting room.

Doesn't meant that you shouldn't consult...Far from it. But if you have 0 symptoms in the daytime then it is probably not a UTI or Pouchitis but more sleep-cycle-related or the time that you eat or drink and what goes in...but that is my opinion and not fact...

Just saying

Sharon

I understand your point but running to the nearest doctor helps prevent the worse from happening.

@skn69 posted:

I like proteins...you can try just eating a chicken breast and having a protein shake or something like (if you can eat it) Greek yogurt.

I like homemade, blended vegetable soups too...I make them with bones sometimes for the extra vitamins and flavor...that with a piece of chicken in it or a fish soup (my favorite food in the world)...it is just every leftover piece of fish that the fishmonger has (bones, heads) that are cooked together and strained...then I add a paprika/tomato base and simmer with spices...it is rich, hearty (you can add chunks of fish and fresh herbs)...it makes for a satisfying, pouch-friendly, bladder-friendly meal that goes in-and-out before bedtime...I sleep like a baby after that!

Make whatever makes you, your mouth and tummy happy but reset your stomach-clock.

It takes me a couple of nights but then I am fine.

Sharon

thank you Sharon! So your method is to have something that goes out quickly. Sounds good.

So thinking out loud now (or in writing)  I would say I am wondering if that will make me feel hungry by bed time (3 - 4 hrs after dinner) and make me eat again before going to bed. I recall your post on trying to ignore our brain/habits and not get up to eat during sleep which relates to this as well. (I dont seem to tolerate being hungry very well. I get a stomach cramp and headache when being hungry for long. I think I had this sensitivity even before I got diagnosed with UC which is 14 years ago). But anyway.

So what I have been thinking about and started it in the last few days is to have a meal that will keep me full but not give me gases which would wake me up and I think plain meat, tuna or hard eggs are good candidates for these as they are not carbs. I started trying hard eggs and be consistent with short frequent meals so that dinner is not heavy. Shall see how it goes. Do you have any advise on this?

thanks

Mina

Sounds like a plan Mina,

We are all different and all have different turn-around times for our digestive processes... I transit fruit in the morning in under 1/2hr...proteins like yogurt or chicken breast (not fried) in under 3hrs...(the time it takes to finish my afternoon classes so that my pouch is empty when I take the subway home)...carbs are too tricky for me because I tend to eat them with cheese and that multiplies (+/-) the digestive times.

When I had my pouch done in 1979 I was told to eat before 5pm (impossible for me) so that my pouch would be empty during the night...like you, I found that I was starving all evening long (and my lifestyle does not allow me to dine at 5pm...Closer to 8 or 9pm).

I was miserable (but very skinny).

I later learned that if I had a meal earlier and a late-night snack an hour before bed, I could sleep through the night without any problem...

Split your meal...eat the heavier part early (carbs) and the protein part later or a nice thick soup...

With Covid, confinement, curfew and everything else going on I either have classes so early that it is ridiculous (up at 5am) or I teach from home and that means I can get up at 7 or 8 am...my system is often thrown out of wack..

Sort of like digestive jet-lag...so I reboot dinner times and either eat earlier or later according to my schedule...you will find your 'bliss' one way or the other...just beware...if you are having uncomfortable symptoms, bloating, cramping, pain, dizziness, headaches or anything out of the normal then track it, write it down and if it persists, call your doctor...things like getting up to pee at night can be a sign of high blood sugar. Cramps can be a sign of potassium loss...

Just saying that sometimes it is nothing and sometimes it is not.

Sharon

I get notifications of posts on this subject. Having been to the dr yesterday, I wanted to share an update on the diagnosis. I thought I was having an interstitial cystitis attack last week and got myself to the urologist. Had been to him March of last year to discuss the issue of this thread.  

Bottom line here: the bladder and bowels (even the pouch) share the same nerve. I am absolutely feeling discomfort in the bladder region and need to empty the bladder. The pouch is not sending the signal. But then still feel the discomfort/pressure, so empty the pouch which relieves the pressure. Why? The shared nerve.

He prescribed Myrbetriq to relax the bladder, advised me to avoid all teas, coffees, spicy and acidic food and alcohol.

I don’t know if this will help anyone. These meds take about three weeks to be effective. Fingers crossed.

I cross my fingers for you...hopefully this is an answer...

@skn69 posted:

Sounds like a plan Mina,

We are all different and all have different turn-around times for our digestive processes... I transit fruit in the morning in under 1/2hr...proteins like yogurt or chicken breast (not fried) in under 3hrs...(the time it takes to finish my afternoon classes so that my pouch is empty when I take the subway home)...carbs are too tricky for me because I tend to eat them with cheese and that multiplies (+/-) the digestive times.

When I had my pouch done in 1979 I was told to eat before 5pm (impossible for me) so that my pouch would be empty during the night...like you, I found that I was starving all evening long (and my lifestyle does not allow me to dine at 5pm...Closer to 8 or 9pm).

I was miserable (but very skinny).

I later learned that if I had a meal earlier and a late-night snack an hour before bed, I could sleep through the night without any problem...

Split your meal...eat the heavier part early (carbs) and the protein part later or a nice thick soup...

With Covid, confinement, curfew and everything else going on I either have classes so early that it is ridiculous (up at 5am) or I teach from home and that means I can get up at 7 or 8 am...my system is often thrown out of wack..

Sort of like digestive jet-lag...so I reboot dinner times and either eat earlier or later according to my schedule...you will find your 'bliss' one way or the other...just beware...if you are having uncomfortable symptoms, bloating, cramping, pain, dizziness, headaches or anything out of the normal then track it, write it down and if it persists, call your doctor...things like getting up to pee at night can be a sign of high blood sugar. Cramps can be a sign of potassium loss...

Just saying that sometimes it is nothing and sometimes it is not.

Sharon

Thank you Sharon!