Night time nonsense...pouch or bladder?

I have had this issue for several months and I can't decide if I should attach the blame to my bladder or pouch. My sleep has been so interrupted.

Every night , like clock work @about 2 a.m. my body wakes me up. There's  a nagging (not hard) pressure in my lower abdemon in the vicinity of my bladder.

I empty my bladder, but that does not relieve the pressure. I empty the pouch and the pressure is gone. I've been able to wait until 7:30 to empty again, but like this morning we had round 2 at 5:30 a.m.

I have no problems during the day so I think  positional have everything to do with it. Other than that, not sure in which direction to go to resolve this.

Any thoughts?

Leslie

 

 

 

Original Post

 have you changed  the time of your last meal of the day and/or when you go to bed?   what is the length of time between the last meal and turning out the light?

You might be waking up at two because you are subconsciously thinking that you will wake up at that time.  Regardless, I too would be concerned. So sorry I can’t help out with any information. Janet

I would think if I had pouchitis, I would have issues during the day as well. And that's not the case.

Nothing has changed in my routine. I've decided to go to the urologist. I've had interstitial cystitis years ago and it hasn't bothered me. It's a possibility.

Thanks for your input.

I agree that if it were pouchitis it will present itself 24/7 and not just at night. Considering you haven’t changed routines it sounds like a good idea to check this out with a urologist. Certainly is an easier appointment to snag than with k pouch doc. I’m interested in your resolution – – for selfish reasons – – as it very occasionally happens with me. I assume my problem is eating  too late and too much in the evening.  Good luck. Janet

I too get so annoyed by night time pouch nonsense. All I want is 8 solid hours of sleep. But every night/early morning my stomach starts grumbling. I try to ignore it. I look at the clock and weigh the pros/cons of waking up to empty my pouch versus struggling to sleep through it. Either way my sleep is disturbed and I’m exhausted the next day. I kinda know part of the issue is that I eat late. I always empty my pouch right before I go to bed but then I immediately get hungry - so I have to eat. So I too would like to hear any suggestions for getting decent sleep. 

I'm finished eating by 7:30. I turn out my light 10:30 usually. There are some nights I don't eat dinner bc of yoga/Pilates class. I also eat light food and not a lot.I also don't eat spicy or acidic foods  So it doesn't matter which one of those nights, it's the same issue.

Shavon posted:

I too get so annoyed by night time pouch nonsense. All I want is 8 solid hours of sleep. But every night/early morning my stomach starts grumbling. I try to ignore it. I look at the clock and weigh the pros/cons of waking up to empty my pouch versus struggling to sleep through it. Either way my sleep is disturbed and I’m exhausted the next day. I kinda know part of the issue is that I eat late. I always empty my pouch right before I go to bed but then I immediately get hungry - so I have to eat. So I too would like to hear any suggestions for getting decent sleep. 

Yes I have tried everything but I am always disturb after 4 hours sleep due to painful pressure so am forced to empty my pouch. Then the problem of attempting to get back to sleep.

It happens to me (at the moment)...but not usually.

It becomes a pattern and your brain/body connection just continues doing it. You need to 'break' the pattern. It is the only way to get back to normal sleep.

Firstly, you need to give yourself a liquid dinner that can be emptied out within 3hrs (or before bed) to be sure that your pouch/bladder are really empty...you might need to push forward your sleep time to do so. 

Then, when it wakes you up at 2am, refuse to leave the bed or listen to it. It is lying to you. You do not need to go. You might need to do this a couple nights in a row to be able to get back to your original schedule but it will happen eventually. 

Mine does it after vacations where I have gone off of both diet and schedule or after some massive wedding where I ate everything in sight and ate very late. 

Good luck

Sharon

Thanks Sharon. 

Am I the only one who gets really hungry right after emptying?  I’ll try liquids as a snack before bed.

I try ignoring the urge to empty but either the cramping hurts so badly that I’m not sleeping anyway so I need to empty to stop the pain. Or it’s so full in the morning that I struggle to get the catheter in - causing more pain.

The only solution I’ve found is drugs - muscle relaxers, OTC sleep aids, etc., whatever to help me sleep through the urge. However it leaves me groggy in the morning and I know I can’t do that forever. 

For those of you who struggle with this nighttime nonsense, how are you maintaining employment and getting to work on time and not crashing from exhaustion every day?  I currently have ADA accommodations and a very understanding supervisor but that won’t last forever. I’m not sure how to work without getting solid sleep. 

Yes I fully understand.  it is this constant disrupted sleep problem.

There is no way I can ignore this pain.  Also remember  adhesions from surgery can play a part.   Sometimes I feel as if I have eaten Lego.

With sleep you can face the world and each day. Lucky those that sleep.

I do use immodium if things are bad. I am so good with my diet and try to only eat healthy food. Making doctors understand this has been impossible for me.

It seems our insides never rest even if our bodies are relaxed.

I  have now cut out all dairy.  This has most certainly cleared my head etc.

I know my body still has ulcerative colitis problems regarding food despite my surgery.

Understand how you feel if this helps. 

 

 

 

I haven't had to empty the last few nights. Two things are different: 1: I started taking probiotics again. 2: I'm not a big eater, especially at dinner. But, my dinner got even even lighter. Small spinach salad with chicken or cup of soup and quinoa salad are examples. I am treating myself to some lowfat frozen yogurt. I'm watching what I eat because my reflux has been so bad so serves two purposes.

It is good to know that becoming hungry after emptying the pouch isn't some weird thing. It happens. 

  • Anyway, I made an appointment with my GI . If she has other helpful hints I will pass them on.

So, I had my GI visit. We agreed it's not pouchitis. She really had no good explanation for this issue. Her suggestion was to make lunch the big meal, eat dinner earlier and make it light. This is what I try to do anyway. She did give me medication to take before bed that hopefully would help me sleep through the nonsense. It only helps me fall back to sleep quickly after being up.

My suggestion for those of you who eat after you empty at night because you are now hungry (and I get it), really try hard not to...it could make some difference.

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