I had my ileostomy take-down June 2015 and I'm still having night time incontinence. I only have a few stools during the day. I'm taking 8 Immodium daily. I did one round of antibiotic for pouchitis several months ago and it helped with the number of day time stools, but did nothing for the incontinence at night. I've been doing Kegel exercises as well. Any suggestions? Give it more time?
There's been plenty of advice posted here on this topic, so a search could provide great information. In the meantime, here are some things to try:
1) don't eat a full meal within a few hours of bedtime
2) try a small, fatty meal just before bedtime (e.g. a spoonful of peanut butter)
3) only use bowel slowers (Imodium, Lomotil) at bedtime, not during the day
4) always empty your pouch before bed
5) get to know your body well enough to just go back to sleep when you wake up, instead of using the toilet (possibly) unnecessarily
I actually do all of these except the peanut butter. I'm lucky enough to almost always sleep through the night.
Try a bulking agent at early evening... I had up to 30 liquid BM a 24 hour period for the last 6 years. Previous to that I was on Tincture of Opium which effectively stopped my GI contraction or motility and took me down to 15 a 24 hour period. I had to go off of it to foster grandkids. I tried to go back on it with my Primary & GI docs but supposedly they can no longer RX long term opioids. Found a pain doc to prescribe and finally back to 15 a day instead of 30!
Has anyone tried Remicade for Crohn’s I have no large intestine and no rectum jpouch had vaginal fistulas had double flap surgery and also had a Medtronic battery in my back to my spincher Muscles and got that out 2018 didn’t work just take 8 lomotil a day and prescription Imodium run constantly still now they want me to try Remicade
Yes, I have been on Remicade for 5 years with good results and no side effects.
Does it keep you from going to bathroom 🚽 day and night I’m from Connecticut also
I have incontinence at night pretty regularly. I have to wear Depends in order to sleep. I've been doing this for years so it's become normal for me. However, I notice that I am not incontinent when I do the following:
- Regularly taking Metamucil - Metamucil has done wonders for me in helping give my stool more form.
- Take imodium before bed - I can usually get through the entire night on only one imodium depending on what I ate that day.
- This one is difficult for me - Don't eat anything after dinner and don't eat dinner later than 7 pm.
If I am doing the above things, I don't normally have an accident during the night.
Sometimes if I feel a little backed up I'll do an enema before I go to bed and make sure I feel more cleared out before lying down. Hopefully this helps some.
I used to have the same problem for the first year of my pouch. I stopped eating after 4 except for a banana around 6:30. I don't overeat. Skip dessert, try to keep fried food low. And I don't drink after 8:30. I take one lomotil and one Imodium before bed. Sometimes if I wake up around 2 or 3 am I will take another Imodium. Doing all this finally worked for me. I was seriously considering going back to an ostomy. Hope this may help a bit. I know from experience it sucks to have nightly incontinence.
And I forgot, emptying your pouch before you go to bed is pretty important also.
That's a real nuisance!
I had little problems for many years, except when I was very ill and feverish.
Some years ago I had a "little" surgery because of an anal fissure. It healed very slowly due to the chronic pouchitis. Since then it has never been as good as before.
The things mentioned above also help me. I take one Imodium at bedtime, try not to eat 5...6 hours before and of course I go to toilet before sleep.
Usually I don't have to get up during night and I can sleep for 6...8 hours, but unfortunately it's seldom that nothing has found the way out.